Innovations in Science

MDA Monthly Report - Past Issues and Articles - Archive

MDA’s Monthly Report eIssue provides a summary of recent and important updates and events for clinicians and researchers working in neuromuscular disease. Within the Issue you will find: thought leader editorials, clinical trial updates/data releases, upcoming events and meetings, grant application deadlines, overviews of recent publications of interest, MDA blog recaps, and program spotlights.

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Please click below to see the previous MDA Monthly Report eIssues.

September 2023 Issue

 

August 2023 Issue

• The Endocrinology Factor in Muscular Dystrophy
• Updates on Newborn Screening for Neuromuscular Diseases

July 2023 Issue

• Why You Should Talk to Patients About Sex and Family Planning

June 2023 Issue

• Clinical Trial Explores New CMT1A Drug Therapy
• Investigating Possible FSHD Treatments

May 2023 Issue

• ALS Research Has a Bright Future
• A Look at How Rare Disease Care Is Progressing

April 2023 Issue

• MDA holds follow-up summit to address challenges in gene therapy
• MDA Conference Makes an Impact
• Best Practices for Facilitating Clinical Trial Participation

March 2023 Issue

• The Role of Genetic Counseling in Informing Families About Genetic Testing Results
• Freidreich's Ataxia Treatment Update

February 2023 Issue

• What Is the Future of Telehealth Policy?
• A Look at Mitochondrial Disease

January 2023 Issue

• Managing Respiratory Function in Neuromuscular Disorders
• Billing Code Changes Are a Step Forward for Care Centers

December 2022 Issue

• 2022 Year in Review

November 2022 Issue

• Best Practices for Managing Cardiac Involvement with NMD
• Navigating Complicated Ethics in Neuromuscular Disease Care

September 2022 Issue

• Taking on the Challenges of Gene Therapy
• MedShr Grows Knowledge in the Medical Community
• Co-author of Study on Corticosteroid Side Effects With DMD Finds More Reasons to Use Them

August 2022 Issue

• The Future of Pediatric Neuromuscular Disease Treatment
• Approaching Difficult Conversations With Patients

July 2022 Issue

• Newborn Screening Improves Health Outcomes
• Advocating for the MDA Community
• Factors for Choosing Adaptive Equipment

June 2022 Issue

• Avoiding Physician Burnout

May 2022 Issue

• Helping Patients Overcome Barriers to Treatment
• Palliative care can be a vital support in ALS and other neuromuscular diseases

April 2022 Issue

• 2022 MDA Clinical & Scientific Conference Highlights
• Improving Outreach and Care to Non-English-Speaking Communities

March 2022 Issue

• Facilitating Transitions to Independence
• In the Lab with Alba Timon-Gomez, PhD

February 2022 Issue

• Applying Nutritional Guidelines To Neuromuscular Disease
• MDA Holds Summit To Address Challenges In Gene Therapy

January 2022 Issue

• Don't Overlook This Resource At Your Fingertips: Quest
• Facing Variants Of Uncertain Significance When Conducting Genetic Testing/whole Genome Sequencing

December 2021 Issue

• Best Practices for Working with Local Caregivers

November 2021 Issue

• Your Role In Critical Decisions

October 2021 Issue

• The Importance Of Mental Health
• Sexual Health For Patients With Neuromuscular Disease

August 2021 Issue

• Clinical Trial Design

July 2021 Issue

• Healthcare And The Americans With Disabilities Act
• MDA Access Workshops Help Families Face Barriers With Knowledge And Resources

June 2021 Issue

• Best Practices to Improve Access to Care
• Program Spotlight

May 2021 Issue

• Healthcare providers, make time to take care of your of your own mental health
• Q&A: telemedicine for management of patients with ALS

April 2021 Issue

• April 2021 MDA Monthly Report Monthly Feature Full Article
• April 2021 MDA Monthly Report Program Spotlight Full Article
• Clinical Research in ALS and Related Disorders for Therapeutic Development (CReATe)

March 2021 Issue

• March 2021 MDA Monthly Report Monthly Feature Full Article

February 2021 Issue

• February 2021 MDA Monthly Report Monthly Feature Full Article

January 2021 Issue

• January 2021 MDA Monthly Report Monthly Feature Full Article

December 2020 Issue

• December 2020 MDA Monthly Report Monthly Feature Full Article

November 2020 Issue

• November 2020 MDA Monthly Report Monthly Feature Full Article

October 2020 Issue

• October 2020 MDA Monthly Report Monthly Feature Full Article

September 2020 Issue

• September 2020 MDA Monthly Report Monthly Feature Full Article

August 2020 Issue

• August 2020 MDA Monthly Report Monthly Feature Full Article
• August 2020 MDA Monthly Report In the News Full Article

July 2020 Issue

• July 2020 MDA Monthly Report Monthly Feature Full Article
• July 2020 MDA Monthly Report In the News Full Article

June 2020 Issue

• June 2020 MDA Monthly Report Monthly Feature Full Article
• June 2020 MDA Monthly Report In the News Full Article

May 2020 Issue

• MDA Monthly Report Monthly Feature Full Article May

April 2020 Issue

• MDA Monthly Report Monthly Feature Full Article April

March 2020 Issue

February 2020 Issue

• MDA Monthly Report Monthly Feature Full Article February

January 2020 Issue

• MDA Monthly Report Monthly Feature Full Article January 2020
• MDA Monthly Report In the News Full Article January

December 2019 Issue

November 2019 Issue

• MDA Monthly Report Monthly Feature November Full Article

October 2019 Issue

• October Monthly Feature Full Article

September 2019 Issue

• September Monthly Feature Full Article

August 2019 Issue

• August Monthly Feature Full Article

July 2019 Issue

• July Monthly Feature Full Article

June 2019 Issue

May 2019 Issue

• May Monthly Report Monthly Feature Full Article
• May Monthly Report In the News Full Article

April 2019 Issue

• MDA April Monthly Report Conference Full Article
• MDA April Monthly Report DMD Webinar Full Article

March 2019 Issue

• March Monthly Report Conference 2019 Full Article

February 2019 Issue

• MDA OneVoice Survey Report
• MDA MOVR Article