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Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

On-Demand Webinars

AGAMREE SUMMIT
Community Industry Update Webinars
Dec 10, 2024
MDA Learning Series: DMD
Virtual Learning Programs
Presenters: Dr. Kaitlin Batley, Dr. Emily Hayes, Little Hercules Foundation
Supported by: Regenxbio
Dec 9, 2024
MDA Webinar: Sibling Support
Virtual Learning Programs
Presenters: Emily Holl, MFA, MSW Director Sibling Support Project
Supported by: Edgewise
Nov 19, 2024
2024 Myasthenia Gravis Virtual Learning Series
Virtual Learning Programs
Presenters: Srikanth Muppidi, MD, Stanford University - Claire Spahn, Pharm D, Stanford University - Jeffrey Rosenfeld PhD., MD, FAAN, Loma Linda University School of Medicine - Leslie Delfiner, MD, Montefiore Medical Center
Supported by: Alexion, Argenx, Genentech, UCB
Jun 11, 2024
MDA Virtual Learning: FSHD - Updates in Research
Virtual Learning Programs
Presenters: Rabi Tawil, MD; Professor of Neurology Pathology and Laboratory Medicine at University of Rochester Medical Center
Supported by: Avidity Biosciences, Fulcrum Therapeutics
Jun 4, 2024
MDA Virtual Learning: Navigating Challenging Behaviors in Children with NMD
Virtual Learning Programs
Presenters: Heidi Light-Giglio, M.Ed., BCBA
May 2, 2024
MDA Virtual Learning: Updates in Research and Clinical Care for CMT
Virtual Learning Programs
Presenters: Dr. Steven Scherer
Mar 26, 2024
 MDA Virtual Learning: Navigating Adolescence with a Neuromuscular Disease
Virtual Learning Programs
Presenters: Dr. Natalie Truba from Nationwide Children’s Hospital
Mar 12, 2024
MDA Virtual Learning: OPMD
Virtual Learning Programs
Presenters: Dr. Bernard Brais
Feb 29, 2024
The Promise of Gene Therapy in LGMD 21R9: AskBio Community Industry Update Webinar
Community Industry Update Webinars
Presenters: Nick Johnson
Supported by: AskBio
Jan 31, 2024
UCB Generalized Myasthenia Gravis Webinar
Community Industry Update Webinars
Presenters: Christyn Edmundson, MD
Dec 15, 2023
 MDA Virtual Learning: Caring for the Caregiver
Virtual Learning Programs
Presenters: Christina Trout, Kelly McCoy Gross
Supported by: Edgewise
Nov 29, 2023
MDA Virtual Learning: Disclosing Your Disability at Work
Virtual Learning Programs
Presenters: Brian Chao, Michael Lewis
Supported by: Edgewise
Nov 16, 2023
VYVGART Youniversity
Community Industry Update Webinars
Presenters: Brian Droker, MD, MS, Doug C., Patient Ambassador
Supported by: Argenx
Nov 14, 2023
MDA Engage Symposium: California
MDA Engage Symposia
Presenters: John W. Day, Srikanth Muppidi, Tina Duong, Craig McDonald, Erik Henricson, Neelam Goyal, Marie Beaudin, Min Kang, Srikanth Muppidi
Supported by: Alexion, Argenx, Avidity Biosciences, Biomarin, Edgewise, Janssen, Sarepta Therapeutics, UCB
Nov 11, 2023
MDA Virtual Learning: Home Modifications
Virtual Learning Programs
Presenters: Lorraine Woodward
Nov 8, 2023
PREVAIL Phase 3 study in generalized Myasthenia Gravis presented by Alexion
Community Industry Update Webinars
Presenters: Sanjay Rakhade MD, PhD, Joachim Scholz, MD
Supported by: Alexion
Oct 17, 2023
MDA Engage Symposium - Minneapolis, MN
MDA Engage Symposia
Supported by: Edgewise, PTC Therapeutics, Sarepta Therapeutics
Sep 23, 2023
MDA Virtual Learning: Friedreich’s Ataxia
Virtual Learning Programs
Sep 19, 2023
MDA Virtual Learning: Pompe Disease
Virtual Learning Programs
Supported by: Amicus Therapeutics
Sep 13, 2023
MTPA presents Conversations About RADICAVA ORS®(edaravone) Chapter 3: An ALS Caregiver’s Perspective
Community Industry Update Webinars
Supported by: Mitsubishi Tanabe Pharma America
Aug 22, 2023
 MDA Virtual Learning Preparing for Emergencies
Virtual Learning Programs
Aug 16, 2023
Gene Therapy 101
Virtual Learning Programs
Presenters: Natalie Goedeker, Craig Zaidman
Jun 22, 2023
MDA Engage Symposium: Princeton, NJ
MDA Engage Symposia
Supported by: Amylyx, Apellis, Biogen, Genentech, MTPA, Scholar Rock
Jun 3, 2023
ALS Learning Series
Virtual Learning Programs
Presenters: Doreen Ho
Supported by: Cytokinetics, Mitsubishi Tanabe Pharma America
May 4, 2023