Your voice matters -- take our community survey today!

Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

On-Demand Webinars

MDA Webinar: Care and Planning Resources for Adults with Neuromuscular Disease
MDA Webinar: Care and Planning Resources for Adults with Neuromuscular Disease
Virtual Learning Programs
Presenters: Lakelyn Eichenberger, Ph.D, Honor and Home Instead / Katie Fields College Outreach Coordinator and Disability Inclusion Consultant, Starkloff Disability Institute
Jan 28, 2025
MDA Webinar: Updates in Friedreich's Ataxia
MDA Webinar: Updates in Friedreich's Ataxia
Virtual Learning Programs
Presenters: Dr. Elena Caron, Associate Professor of Pediatric Neurology and MDA Care Center Director, Le Bonheur Children's Hospital
Supported by: Biogen, Lexeo Therapeutics
Jan 27, 2025
Air Travel Policies and Procedures
Air Travel Policies and Procedures
Virtual Learning Programs
Presenters: Shannon Wood, Danica Gonzalves, Esq, Steven Cullen
Supported by: Amicus Therapeutics
Jan 21, 2025
AGAMREE SUMMIT
AGAMREE SUMMIT
Community Industry Update Webinars
Dec 10, 2024
MDA Learning Series: DMD
MDA Learning Series: DMD
Virtual Learning Programs
Presenters: Dr. Kaitlin Batley, Dr. Emily Hayes, Little Hercules Foundation
Supported by: Regenxbio
Dec 9, 2024
MDA Webinar: Sibling Support
MDA Webinar: Sibling Support
Virtual Learning Programs
Presenters: Emily Holl, MFA, MSW Director Sibling Support Project
Supported by: Edgewise
Nov 19, 2024
Gene Therapy Learning Series
Gene Therapy Learning Series
Virtual Learning Programs
Oct 30, 2024
2024 Myasthenia Gravis Virtual Learning Series
2024 Myasthenia Gravis Virtual Learning Series
Virtual Learning Programs
Presenters: Srikanth Muppidi, MD - Claire Spahn - Jeffrey Rosenfeld PhD., MD, FAAN - Leslie Delfiner, MD
Supported by: Alexion, Argenx, Genentech, UCB
Jun 11, 2024
MDA Virtual Learning: FSHD - Updates in Research
MDA Virtual Learning: FSHD - Updates in Research
Virtual Learning Programs
Presenters: Rabi Tawil, MD; Professor of Neurology Pathology and Laboratory Medicine at University of Rochester Medical Center
Supported by: Avidity Biosciences, Fulcrum Therapeutics
Jun 4, 2024
MDA Virtual Learning: Navigating Challenging Behaviors in Children with NMD
MDA Virtual Learning: Navigating Challenging Behaviors in Children with NMD
Virtual Learning Programs
Presenters: Heidi Light-Giglio, M.Ed., BCBA
May 2, 2024
MDA Virtual Learning: Updates in Research and Clinical Care for CMT
MDA Virtual Learning: Updates in Research and Clinical Care for CMT
Virtual Learning Programs
Presenters: Dr. Steven Scherer
Mar 26, 2024
MDA Virtual Learning: Navigating Adolescence with a Neuromuscular Disease
MDA Virtual Learning: Navigating Adolescence with a Neuromuscular Disease
Virtual Learning Programs
Presenters: Dr. Natalie Truba from Nationwide Children’s Hospital
Mar 12, 2024
MDA Virtual Learning: OPMD
MDA Virtual Learning: OPMD
Virtual Learning Programs
Presenters: Dr. Bernard Brais
Feb 29, 2024
The Promise of Gene Therapy in LGMD 21R9: AskBio Community Industry Update Webinar
The Promise of Gene Therapy in LGMD 21R9: AskBio Community Industry Update Webinar
Community Industry Update Webinars
Presenters: Nick Johnson
Supported by: AskBio
Jan 31, 2024
UCB Generalized Myasthenia Gravis Webinar
UCB Generalized Myasthenia Gravis Webinar
Community Industry Update Webinars
Presenters: Christyn Edmundson, MD
Dec 15, 2023
MDA Virtual Learning: Caring for the Caregiver
MDA Virtual Learning: Caring for the Caregiver
Virtual Learning Programs
Presenters: Christina Trout, Kelly McCoy Gross
Supported by: Edgewise
Nov 29, 2023
MDA Virtual Learning: Disclosing Your Disability at Work
MDA Virtual Learning: Disclosing Your Disability at Work
Virtual Learning Programs
Presenters: Brian Chao, Michael Lewis
Supported by: Edgewise
Nov 16, 2023
VYVGART Youniversity
VYVGART Youniversity
Community Industry Update Webinars
Presenters: Brian Droker, MD, MS, Doug C., Patient Ambassador
Supported by: Argenx
Nov 14, 2023
MDA Engage Symposium: California
MDA Engage Symposium: California
MDA Engage Symposia
Presenters: John W. Day, Srikanth Muppidi, Tina Duong, Craig McDonald, Erik Henricson, Neelam Goyal, Marie Beaudin, Min Kang, Srikanth Muppidi
Supported by: Alexion, Argenx, Avidity Biosciences, Biomarin, Edgewise, Janssen, Sarepta Therapeutics, UCB
Nov 11, 2023
MDA Virtual Learning: Home Modifications
MDA Virtual Learning: Home Modifications
Virtual Learning Programs
Presenters: Lorraine Woodward
Nov 8, 2023
PREVAIL Phase 3 study in generalized Myasthenia Gravis presented by Alexion
PREVAIL Phase 3 study in generalized Myasthenia Gravis presented by Alexion
Community Industry Update Webinars
Presenters: Sanjay Rakhade MD, PhD, Joachim Scholz, MD
Supported by: Alexion
Oct 17, 2023
MDA Engage Symposium - Minneapolis, MN
MDA Engage Symposium - Minneapolis, MN
MDA Engage Symposia
Supported by: Edgewise, PTC Therapeutics, Sarepta Therapeutics
Sep 23, 2023
MDA Virtual Learning: Friedreich’s Ataxia
MDA Virtual Learning: Friedreich’s Ataxia
Virtual Learning Programs
Sep 19, 2023
MDA Virtual Learning: Pompe Disease
MDA Virtual Learning: Pompe Disease
Virtual Learning Programs
Supported by: Amicus Therapeutics
Sep 13, 2023
MTPA presents Conversations About RADICAVA ORS®(edaravone) Chapter 3: An ALS Caregiver’s Perspective
MTPA presents Conversations About RADICAVA ORS®(edaravone) Chapter 3: An ALS Caregiver’s Perspective
Community Industry Update Webinars
Supported by: Mitsubishi Tanabe Pharma America
Aug 22, 2023