November is National Family Caregivers Month!

Innovations in Care

We provide access to support and programs that empower the lives of people living with neuromuscular diseases.

Print-Ready Educational Materials

MDA has prepared print-ready materials to help educate the neuromuscular disease community about the fundamentals of neuromuscular disease as well as topics related to daily living. New resources are always in development, so please check back periodically to access more information and materials.

Disease Fact Sheets

These fact sheets provide general information about each disease including signs and symptoms, diagnosis, prognosis and treatments.

ALS-fact-sheet-24.jpg

ALS Fact Sheet cover
Amyotrophic Lateral Sclerosis (ALS)

bmd.jpg

Fact sheet for Becker muscular dystrophy.
Becker muscular dystrophy (BMD)

cmt.jpg

Fact sheet for Charcot-Marie-Tooth disease.
Charcot-Marie-Tooth disease (CMT)

dmd12-23.jpg

Fact sheet for Duchenne Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)

fshd.jpg

Fact sheet for Facioscapulohumeral muscular dystrophy.
Facioscapulohumeral muscular dystrophy (FSHD)

fa-thumb-12-23.jpg

Fact sheet for Friedreich Ataxia
Friedreich Ataxia (FA)

lgmd.jpg

Fact sheet for Limb-girdle muscular dystrophies.
Limb-girdle muscular dystrophies (LGMD)

md.jpg

Fact sheet for Mitochondrial Myopathies.
Mitochondrial Myopathies (MM)

mg-thumb.jpg

Myasthenia gravis (MG)
Myasthenia gravis (MG)

myd.jpg

Myotonic dystrophy downloadable document.
Myotonic dystrophy (DM)

pd.jpg

Pompe Disease downloadable resource.
Pompe Disease

sma.jpg

Spinal muscular atrophy (SMA)

To learn more about these and other neuromuscular diseases supported by MDA, visit our disease webpages.

Disease Specific Resources

Detecting-dmd.jpg

Detecting Signs and Symptoms of DMD cover
Detecting Signs and Symptoms of DMD

dmd-faq.jpg

DMD FAQ document.
DMD FAQ

How-DMD-Happens-thumb.jpg

How DMD Happens pdf cover thumbnail
How DMD Happens

maintaining-Breathing-als-2024.jpg

Maintaining Breathing Function with ALS
Maintaining Pulmonary Function with ALS

Maintaining-Pulmonary-Function-DMD.jpg

Maintaining Pulmonary Function with DMD document.
Maintaining Pulmonary Function with DMD

Emergency Care Resources

ALS-Alert-Card.jpg

ALS Emergency Room Alert Card
ALS Emergency Room Alert Card

dmd-alrt.png

DMD ER Alert Card

Emergency-Preparedness-for-People-with-Disabilities-1.jpg

Emergency Preparedness for People with Disabilities

Screenshot_20241009_111647.png

MG ER Alert Card

NMD-ER-Alert-Card-Summary.jpg

NMD ER Alert Summary
NMD ER Alert Summary

Preparing-for-Emergencies_A-Checklist-for-People-with-NMD-1.jpg

Preparing for Emergencies: A Checklist for People with NMD

Exercise

at-home-pt-for-als.png

At-Home Physical Therapy Exercises for ALS

at-home-pt.jpg

Screenshot for at home physical therapy for DMD.
At-Home Physical Therapy Exercises for DMD

At-Home-Physical-Therapy-Exercises-for-Pompe-Disease.jpg

At-Home Physical Therapy Exercises for Pompe Disease

sma-exercises.jpg

At-Home Physical Therapy Exercises for Spinal Muscular Atrophy
At-Home Physical Therapy Exercises for SMA

Gene Therapy

dmd-alrt.png

DMD Alert Card

er-alert-card.png

ER Alert Summary

Understanding-Gene-Therapy-V2.jpg

Understanding Gene Therapy
Gene Therapy FAQ

Gene-Therapy-Planning-Checklist-thumb.jpg

Gene Therapy Planning Checklist
Gene Therapy Planning Checklist

A-Guide-to-Gene-Therapy.jpg

A Guide to Gene Therapy
Gene Therapy: A Guide for What to expect

Myths-and-Facts-About-Gene-Therapy.jpg

Myths and Facts About Gene Therapy
Gene Therapy: Myths and Facts

gt-insurance-thumb.png

GTx Insurance Process.
Navigating the Insurance Process

Impact-of-Gene-Therapy-on-Families.jpg

The Impact of Gene Therapy on Families first page
The Impact of Gene Therapy on Families

General Neuromuscular Disease Resources

Caring-for-your-Mental-Health.jpg

Caring for your Mental Health
Caring for your Mental Health

Screenshot_20241009_112128.png

Clinical Trials 101

clinical-trials-thumb.png

Clinical Trials FAQ

mda-college-planning-worksheet.png

College Planning Worksheet

dental-health-thumb.png

Dental Health

Financial-Independence-Checklists.jpg

Financial Independence Checklists
Financial Independence Checklists

health-insurance-worksheet.jpg

Downloadable health insurance worksheet from the MDA.
Health Insurance Worksheet

home-modification-thumb.png

Home Modifications

guide-for-caregivers-thumb.png

MDA Guide for Caregivers

Transition-Guide-Pediatric-to-Adult-Care-tn.jpg

MDA Transition Guide: Pediatric to Adult Care
MDA Transition Guide: Pediatric to Adult Care

Medical-Terminology-smal.png

Medical Terminology
Medical Terms You Need to Know

Mental-Health-Considerations-for-Caregivers.jpg

Mental Health Considerations for Caregivers
Mental Health Considerations for Caregivers

Mental-Health.jpg

Neuromuscular Disease and Your Mental Health
Neuromuscular Disease and Your Mental Health

Nutrition-Print-Material-thumb.jpg

Nutrition with a Neuromuscular Disease cover thumbnail
Nutrition with a Neuromuscular Disease

Planning-for-End-of-Life-Care.jpg

Planning for End-of-Life Care PDF Cover
Planning for End-of-Life Care

Genetics and Genetic Testing

genetic-testing-als.jpg

image of first page of Genetic Testing Options for ALS
Genetic Testing Options for Amyotrophic Lateral Sclerosis (ALS)

genetic-testing-cmt.jpg

Genetic Testing Options for Charcot-Marie-Tooth Disease (CMT) thumbnail
Genetic Testing Options for Charcot-Marie-Tooth (CMT)

genetic-testing-lgmd.jpg

Genetic Testing Options for Limb-girdle Muscular Dystrophy (LGMD) thumbnail
Genetic Testing Options for Limb-girdle Muscular Dystrophy (LGMD)

genetic-testing-pompe.jpg

Genetic Testing Options for Pompe Disease thumbnail
Genetic Testing Options for Pompe Disease

Genetics-and-NMD-thumb.jpg

Genetics and Neuromuscular Disease
Genetics and Neuromuscular Disease

Genetics-Infograph-thumb.jpg

How Genetic Neuromuscular Disease Happens
How Genetic Neuromuscular Disease Happens

How-Spinal-Muscular-Atrophy-Happens.jpg

How Spinal Muscular Atrophy Happens
How SMA Happens: Inheritance Patterns

K-12 Education Resources

mda-educators-dmd.jpg

Downloadable educational flyer on Duchenne Muscular Dystrophy.
MDA Educators' Flyer - Duchenne Muscular Dystrophy

mda-educators-dm.jpg

Downloadable educational flyer on Myotonic dystrophy.
MDA Educators' Flyer - Myotonic Dystrophy

mda-educators-sma-2024.jpg

Downloadable educational flyer on Spinal Muscular Atrophy.
MDA Educators' Flyer - Spinal Muscular Atrophy

Transition-Guide-Pediatric-to-Adult-Care-tn.jpg

MDA Transition Guide: Pediatric to Adult Care
MDA Transition Guide: Pediatric to Adult Care

teacher-guide.jpg

Teacher's Guide

The-IEP-Process-Access-To-Education-K-12-thumb.jpg

The IEP Process: Access To Education K-12
The IEP Process

Thank you to our supporter:

Genentech