Innovations in Care

MDA Resource Center

You don't have to navigate your neuromuscular disease journey alone - we're here to help. The MDA Resource Center is available to provide one-on-one support via phone or email for individuals and families looking for an overview of disease information in our program, resources, activities and more.

How We Can Help

The Resource Center is your one-stop shop for information such as:

• How to join MDA
• MDA’s mission
• Clinical trials
• MDA Care Centers
• MDA ALS Care Centers
• Accessing MDA Programs
• Research advances
• Advocacy efforts
• MDA Summer Camp
• Diseases in MDA’s program
• The diagnostic process
• Community resource referrals
• Volunteer opportunities

Contact Us

MDA Resource staff are available Monday through Friday 9 am to 5 pm CST and are typically able to answer all questions within 1-2 business days. If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA services are available only in the U.S.

By Phone: 1-833-ASK-MDA1 (1-833-275-6321)
By Email: ResourceCenter@mdausa.org
Request for Information: Connect with us here

MDA's Resource Center is a member of the Alliance of Information and Referral Systems (AIRS). AIRS is the professional membership association for community Information and Referral (I&R). AIRS is the driving force behind the delivery of quality I&R services and the sole source for standards, program accreditation and practitioner certification for the I&R sector.