Care and Connection That Matter
Access to care, trusted guidance, and meaningful programs that support individuals and families—every step of the way.
Print-Ready Educational Materials
MDA has prepared print-ready materials to help educate the neuromuscular disease community about the fundamentals of neuromuscular disease as well as topics related to daily living. New resources are always in development, so please check back periodically to access more information and materials.
Disease Fact Sheets
These fact sheets provide general information about each disease including signs and symptoms, diagnosis, prognosis and treatments.
To learn more about these and other neuromuscular diseases supported by MDA, visit our disease webpages.
Disease Specific Resources
Emergency Care Resources
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Emergency Preparedness for People with Disabilities
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Preparing for Emergencies: A Checklist for People with NMD
Exercise
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At-Home Physical Therapy Exercises for Pompe Disease
Gene Therapy
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Gene Therapy: A Guide for What to expect
General Neuromuscular Disease Resources
Genetics and Genetic Testing
K-12 Education Resources
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Behavior Support for Children with Neuromuscular Diseases
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MDA Transition Guide: Pediatric to Adult Care
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Support for Siblings of Children Living with a Neuromusuclar Disease
Mental Health
Transition to Adulthood
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