You don’t have to navigate your neuromuscular disease journey alone. As a member of the MDA Community, one of the many ways you can connect with others and share your personal story is by joining an MDA Community Group. Community Groups are supportive groups that provide a safe place to gather resources, interact meaningfully with others and exchange valuable information with others in the neuromuscular disease community.
MDA offers three different Community Groups for you to choose from including:
Newly Diagnosed Groups
Pediatric Group for those under the age of 18 and diagnosed within the last year
Dates and times coming soon
Adult Group for those over the age of 18 and diagnosed within the last year
Dates and times coming soon
ALS group for those living with ALS and their family members
Third Thursday of every month, 5pm CT
Gene Therapy Community Groups:
Parent/Guardians of children 0-17 with DMD/SMA who have received gene therapy or who are eligible for gene therapy.
Every other Tuesday - April 2 - June 11, 2024
Parents/Guardians of children 0-17 with DMD who are not eligible for gene therapy.
Every other Thursday - April 4 - June 13, 2024
Parents/Guardians of children 0-17 with SMA who are not eligible for gene therapy.
Every other Thursday - April 11 - June 20, 2024
MDA membership is required to attend a Community Group, and Community Groups will only be offered in English at this time.