You don’t have to navigate your neuromuscular disease journey alone. As a member of the MDA Community, one of the many ways you can connect with others and share your personal story is by joining an MDA Community Group. Community Groups are supportive groups that provide a safe place to gather resources, interact meaningfully with others and exchange valuable information with others in the neuromuscular disease community.
MDA offers four different Community Groups for you to choose from including:
Adult Community Support Group
Adult Group for adults ages 18+
Adult - 3rd Wednesday of the month at 5pm CT
1/15/2025
2/19/2025
3/19/2025
4/16/2025
5/21/2025
6/18/2025
7/16/2025
8/20/2025
9/17/2025
10/15/2025
11/19/2025
12/17/2025
Join an Adult Support Group
Pediatric Community Support Group
Pediatric Group for parents/guardians with a child under the age of 18 (children are welcome)
Pediatric Group - 3rd Wednesday of the month at 4pm CT
1/15/2025
2/19/2025
3/19/2025
4/16/2025
5/21/2025
6/18/2025
7/16/2025
8/20/2025
9/17/2025
10/15/2025
11/19/2025
12/17/2025
Join a Pediatric Support Group
ALS Community Support Group
ALS Group for those living with ALS and their family members
ALS - 3rd Thursday of the month at 5pm CT
1/16/2025
2/20/2025
3/20/2025
4/17/2025
5/15/2025
No June Session Due to Juneteenth
7/17/2025
8/21/2025
9/18/2025
10/16/2025
11/20/2025
12/18/2025
Join an ALS Support Group
Gene Therapy Community Support Group
Gene Therapy Community Groups will operate in an open group conversational format that welcomes new eligible participants to join.
Currently, Gene Therapy Community Groups are open to parents/guardians of individuals with DMD (age 0-17) and SMA (age 0-2) and happen monthly.
Contact the Resource Center to discuss joining a community group!
MDA membership is required to attend a Community Group, and Community Groups will only be offered in English at this time.
Join a Gene Therapy Community Group
Click on the video below to learn more about MDA Community Support Groups:
VIDEO
If you prefer to connect one on one with another member of the MDA Community, click here .
Contact Us MDA Resource staff are available Monday through Friday 9 am to 5 pm CT:
By Phone: 1-833-ASK-MDA1 (1-833-275-6321)
