

We use cookies to improve your experience.
You don’t have to navigate your neuromuscular disease journey alone. As a member of the MDA Community, one of the many ways you can connect with others and share your personal story is by joining an MDA Community Group. Community Groups are supportive groups that provide a safe place to gather resources, interact meaningfully with others and exchange valuable information with others in the neuromuscular disease community.
MDA offers four different Community Groups for you to choose from including:
Adult Group for adults ages 18+
Pediatric Group for parents/guardians with a child under the age of 18 (children are welcome)
ALS Group for those living with ALS and their family members
Gene Therapy Community Groups will operate in an open group conversational format that welcomes new eligible participants to join.
Currently, Gene Therapy Community Groups are open to parents/guardians of individuals with DMD (age 0-17) and SMA (age 0-2) and happen monthly.
Contact the Resource Center to discuss joining a community group!
MDA membership is required to attend a Community Group, and Community Groups will only be offered in English at this time.
Join a Gene Therapy Community GroupClick on the video below to learn more about MDA Community Support Groups:
If you prefer to connect one on one with another member of the MDA Community, click here.
MDA Resource staff are available Monday through Friday 9 am to 5 pm CT:
By Phone: 1-833-ASK-MDA1 (1-833-275-6321)
By Email: ResourceCenter@mdausa.org
Muscular Dystrophy Association, Inc.
1016 W Jackson Blvd #1073
Chicago, Illinois 60607
800-572-1717 | ResourceCenter@mdausa.org
The Muscular Dystrophy Association (MDA) is a qualified 501(c)(3) tax-exempt organization.
©2025, Muscular Dystrophy Association Inc. All rights reserved.
The Muscular Dystrophy Association (MDA)
is a qualified 501(c)(3) tax-exempt organization.
2025, Muscular Dystrophy Association Inc. All rights reserved.