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Innovations in Care
We provide access to support and programs that empower the lives of people living with neuromuscular diseases.
Daily Living
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Amyotrophic Lateral Sclerosis Care Guidelines
The guidelines, released by the American Academy of Neurology, are based on evidence that they’re effective in caring for people with ALS.
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Congenital Muscular Dystrophy Care Guidelines
The first-ever CMD care guidelines focus on the latest developments in diagnosis, treatment and medical management of these rare diseases.
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Duchenne Muscular Dystrophy Care Guidelines December 2009
From the DMD Care Considerations Working Group, a comprehensive set of clinical care recommendations for the diagnosis and management of DMD
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Everybody’s Different, Nobody’s Perfect
A colorful, easy-to-read booklet in English and Spanish helps young children understand muscular dystrophy and related muscle-debilitating diseases.
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Everyday Life with ALS: A Practical Guide
In large type and with many illustrations, this manual contains extensive advice and support for those living with ALS and their caregivers. Step-by-step instructions, checklists and additional resources are included.
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Exercising with a Muscle Disease
Insights from research, medicine, exercise experts and people with neuromuscular diseases. Includes information on recommended exercises for those with a neuromuscular disease, as well as their caregivers.
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Pregnancy and Childbirth with Neuromuscular Disease
A special report examining issues that arise for expectant mothers with neuromuscular diseases. Includes information about disease-specific complications, and stories from women with neuromuscular diseases who gave birth.
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Preparing for Emergencies: A Checklist for People with Neuromuscular Diseases
People can prepare for home emergencies by completing the checklists and filling in the essential information in this brochure.
![](https://www.mda.org/sites/default/files/Spinal%20Muscular%20Atrophy%20Care%20Guidelines.jpg)
Spinal Muscular Atrophy Care Guidelines
The SMA Standard of Care Committee released a “consensus statement” on clinical care that sets guidelines aimed at standardizing the management of this disease.
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Travis: I Got Lots of Neat Stuff (bilingual)
Written by the mother of a boy with muscular dystrophy, this simple picture book helps children realize that life can be fun even with muscular dystrophy or related muscle-debilitating diseases.