US FDA Grants Expanded Approval of ELEVIDYS Gene Therapy for DMD Patients Ages 4 and Above

Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

On-Demand Webinars

Neuromuscular Disease Research Year In Review
Neuromuscular Disease Research Year In Review
Facebook Live
Supported by: Genentech, Mitsubishi Tanabe Pharma America, Sanofi Genzyme
Dec 1, 2020
Exploring a New Treatment for SMA
Exploring a New Treatment for SMA
Community Industry Update Webinars
Supported by: Genentech
Nov 18, 2020
Introducing a New Limb girdle Muscular Dystrophy Natural History Study
Introducing a New Limb girdle Muscular Dystrophy Natural History Study
Community Industry Update Webinars
Supported by: Sarepta Therapeutics
Nov 18, 2020
2020 MDA Engage Spinal Muscular Atrophy Symposium
2020 MDA Engage Spinal Muscular Atrophy Symposium
MDA Engage Symposia
Supported by: Biogen, Cytokinetics, Genentech
Nov 14, 2020
2020 Engage Community Education Seminar - Featuring Speakers from the Southeast
2020 Engage Community Education Seminar - Featuring Speakers from the Southeast
MDA Engage Community Education Seminars
Supported by: Biogen, Genentech, Numotion Foundation
Nov 7, 2020
Friedreich Ataxia (FA)
Friedreich Ataxia (FA)
MDA Engage Community Webinars
Presenters: Dr. S.H. Subramony, directs the adult Muscular Dystrophy clinics and Ataxia clinic at the University of Florida Health in Gainesville, FL
Nov 5, 2020
2020 Engage Community Education Seminar - Featuring Speakers from the Midwest
2020 Engage Community Education Seminar - Featuring Speakers from the Midwest
MDA Engage Community Education Seminars
Supported by: Biogen, Genentech, Numotion Foundation
Oct 24, 2020
Physical Therapy and Becker Muscular Dystrophy
Physical Therapy and Becker Muscular Dystrophy
MDA Engage Community Webinars
Presenters: Abby Yenzer, DPT from Washington University School of Medicine
Supported by: Edgewise
Oct 21, 2020
2020 Engage Community Education Seminar - Featuring Speakers from the South
2020 Engage Community Education Seminar - Featuring Speakers from the South
MDA Engage Community Education Seminars
Supported by: Biogen, Genentech, Numotion Foundation
Oct 17, 2020
The Treatment Landscape of SMA
The Treatment Landscape of SMA
MDA Engage Community Webinars
Presenters: Dr. Chiriboga practices medicine at Columbia University Irving Medical Center and New York-Presbyterian Hospital
Supported by: Genentech
Oct 14, 2020
2020 Engage Community Education Seminar - Featuring Speakers from the Northeast
2020 Engage Community Education Seminar - Featuring Speakers from the Northeast
MDA Engage Community Education Seminars
Supported by: Biogen, Genentech, Numotion Foundation
Oct 3, 2020
Clinical Trials: Research and Participation
Clinical Trials: Research and Participation
MDA Engage Community Webinars
Sep 30, 2020
Clinical Trials: From Design to FDA Consideration
Clinical Trials: From Design to FDA Consideration
MDA Engage Community Webinars
Sep 30, 2020
2020 Engage Community Education Seminar - Featuring Speakers from the Southwest
2020 Engage Community Education Seminar - Featuring Speakers from the Southwest
MDA Engage Community Education Seminars
Supported by: Biogen, Genentech, Numotion Foundation
Sep 26, 2020
MDA Engage Community Education Seminar - Featuring Speakers from the MidAtlantic
MDA Engage Community Education Seminar - Featuring Speakers from the MidAtlantic
MDA Engage Community Education Seminars
Supported by: Biogen, Genentech, Numotion Foundation
Sep 19, 2020
2020 MDA Engage ALS Symposium
2020 MDA Engage ALS Symposium
MDA Engage Symposia
Supported by: Alexion, Biogen, Cytokinetics, Genentech, Mitsubishi Tanabe Pharma America, Orphazyme
Sep 15, 2020
2020 Engage Myasthenia Gravis Symposium
2020 Engage Myasthenia Gravis Symposium
MDA Engage Symposia
Supported by: Alexion, Argenx, Immunovant, Momenta Pharmaceuticals, UCB
Sep 12, 2020
MDA Engage Community Education Seminar - Featuring Speakers from the Midwest
MDA Engage Community Education Seminar - Featuring Speakers from the Midwest
MDA Engage Community Education Seminars
Supported by: Biogen, Genentech, Numotion Foundation
Aug 15, 2020
MDA Engage Community Education seminar – Featuring Speakers from the South
MDA Engage Community Education seminar – Featuring Speakers from the South
MDA Engage Community Education Seminars
Supported by: Biogen, Genentech, Numotion Foundation
Aug 15, 2020
2020 Engage Duchenne Muscular Dystrophy Symposium
2020 Engage Duchenne Muscular Dystrophy Symposium
MDA Engage Symposia
Supported by: PTC Therapeutics, Sarepta Therapeutics
Aug 8, 2020
MDA Engage YouTube Community Education Seminar - Featuring Speakers from the Northwest
MDA Engage YouTube Community Education Seminar - Featuring Speakers from the Northwest
MDA Engage Community Education Seminars
Supported by: Biogen, Genentech, Numotion Foundation
Aug 1, 2020
MDA Engage Community Education Seminar Featuring Speakers from the West
MDA Engage Community Education Seminar Featuring Speakers from the West
MDA Engage Community Education Seminars
Supported by: Biogen, Genentech, Numotion Foundation
Jul 25, 2020
Clinical Trials and the ALS Community
Clinical Trials and the ALS Community
MDA Engage Community Education Seminars
Presenters: Dr. Sabrina Paganoni, PhD, and Judi Carey, RN, from Massachusetts General Hospital
Supported by: Biogen, Mitsubishi Tanabe Pharma America
Jul 23, 2020
2020 Engage LGMD Symposium
2020 Engage LGMD Symposium
MDA Engage Symposia
Supported by: FibroGen, PTC Therapeutics, Sarepta Therapeutics
Jul 18, 2020
2020 Engage Pompe Symposium
2020 Engage Pompe Symposium
MDA Engage Symposia
Supported by: Amicus Therapeutics, AvroBIO, Diplomat Specialty Infusion Group, Sanofi Genzyme, Spark Therapeutics
Jul 12, 2020