About Us
Our mission is to empower people living with neuromuscular diseases to live longer, more independent lives.
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Institutional Awards
Paul G. Rogers Distinguished Organization Advocacy Award - Research!America Advocacy Awards 2025
The Patient Advocacy Award (Non-profit) - Advanced Therapies Awards 2024
Recipient: Muscular Dystrophy Association’s Gene Therapy Support Network (GTXSN)Print Publication Finalist - PR Daily Awards 2024
Recipient: Quest Media PrintSonia Skarlatos Public Service Award – American Society of Gene + Cell Therapy
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Team/Group Awards
Top 100 Marketing Teams - OnConference 2024
Recipient: Marketing and CommunicationsDrive Purpose Campaign - PR Daily Content Marketing Awards 2024
Recipient: #AccessibleAirTravel CampaignCall to Action - 16th Annual Shorty Award Finalist and Audience Honor
Recipient: #AccessibleAirTravel CampaignCall to Action – 9th Annual Shorty Impact Award Finalist
Recipient: #AccessibleAirTravel CampaignFederal Advocacy by a Patient Advocate or Organization - EveryLife Foundation RareVoice Awards 2023
Recipient: Mindy Henderson, Vice President, Disability Outreach & Empowerment and Madison Lawson, MDA AdvocateCommunications Innovation Award - Public Affairs Council Innovation Awards 2024
Recipient: Muscular Dystrophy Association - #AccessibleAirTravel Campaign -
Individual Awards
Most Valuable Philanthropist Award - Major League Baseball Players Association 2024
Recipient: Rhys Hoskins, MLB Player MDA AdvocateMarvin Miller Man of the Year Award - Major League Baseball Players Association 2024
Recipient: Rhys Hoskins, MLB Player & MDA AdvocateThe Top 50 Women Chief Development Officers of 2024 – Women We Admire
Recipient: Ruth Ann Daily, Chief Development OfficerTop Women in Marketing - Ragan Team Leaders 2024
Recipient: Morgan Roth, Chief Marketing OfficerTop 50 Chief Operations Officer - OnConference 2024
Recipient: Mike Kennedy, Chief Financial Officer and Chief Operating OfficerHenry Viscardi Achievement Award 2023 - The Viscardi Center
Recipient: Mindy Henderson, Vice President, Disability Outreach & EmpowermentMarcoms Most Influential List - The PRNet 2023
Recipient: Mary Fiance, Vice President, Strategic Communications
