Medical Educational Resource
Transition from Pediatric to Adult Care in Muscular Dystrophies: DMD, LGMD, FSHD, Myotonic Dystrophy
Activity Snapshot
This activity has received an educational grant from PTC Therapeutics Inc.
Faculty
Children’s Hospital of Philadelphia
Perelman School of Medicine at the University of Pennsylvania
The Children's Hospital of Philadelphia Neuromuscular Program
The Children’s Hospital of Philadelphia
Hospital of the University of Pennsylvania, Department of Neurology
The transition from pediatric to adult care is a challenging time for patients with neuromuscular disease and their families, as well as for providers. Increased use of disease-modifying treatments will likely lead to increased numbers of patients going through the transition process, and providers need to be aware of best practices to ensure this process is beneficial to all stakeholders. Part two of this three-part series will focus on Duchenne and other muscular dystrophies.