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Transitions in Care in SMA Patient #3: Supporting social/emotional health during transition in care

Activity Snapshot

Activity Type: 
Print/PDF
Release Date: 
Wednesday, April 13, 2022

Faculty

Vanessa Battista, DNP, MBA, MS, RN, CPNP-PC, CHPPN

Children’s Hospital of Philadelphia Philadelphia, PA

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Activity Overview: 

This case study will explore supporting social/emotional health during the transition in care in patient #3 (19-year-old female).

Learning Objectives: 

  • ·Identify factors that affect disease course in spinal muscular atrophy (SMA)

    • SMA subtype, time of onset or diagnosis, vigilant respiratory and multidisciplinary care, approved therapies, etc.

  • Understand the differing needs of pediatric vs adult patients with SMA, with emphasis on the importance of psychosocial support for adult patients

  • Implement proper medical management for transitions in care, according to best practice guidelines that help address issues specifically encountered by patients with SMA