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Transitions in Care in DMD Patient #3 - No Transition Plan

Activity Snapshot

Activity Type: 
Print/PDF
Release Date: 
Tuesday, December 1, 2020
Sponsor Information: 

Supported in part by a medical education grant from PTC Therapeutics, Inc.

Faculty

Meghan Harper-Shankie, MD
Pediatric Neurologist, Multidisciplinary MDA Neuromuscular Clinic, Beaumont Neuroscience Center
Transitions in Care in DMD Patient #3 - No Transition Plan
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Activity Overview: 

This case study will explore transitions in care in DMD in patient #3 (23-year-old male). The focus of this case study is on no transition plan.

Learning Objectives: 
  • Best practices leading up to official transition of care to adult providers
  • Medical considerations in the management of DMD during transition (e.g., pulmonary and cardiac comorbidities, maintenance of steroid treatment).
  • Fostering independence during clinic visits
  • The importance of psychosocial intervention and facilitating patient engagement opportunities
  • Financial considerations that may impact access to care