Amyotrophic Lateral Sclerosis (ALS)

MDA President and CEO Takes the #ALSIceBucketChallenge

CHIGAGO, August 15, 2014 – Having a bucket of ice water dumped on your head may not seem dignified, but it is certainly helping MDA and other ALS-fighting organizations raise awareness and funds as the viral social media craze continues to sweep across America.  

Today, Steven M. Derks, President and CEO of the Muscular Dystrophy Association, joined the ranks of tens of thousands of people willing to get chilled in the ALS Ice Bucket Challenge.

ALS: BrainStorm to Test NurOwn Cells in US

Tirasemtiv May Slow Respiratory Decline in ALS

ALS: Experimental Drug Tirasemtiv Fails To Show Efficacy in Phase 2b Trial



Shape of Genetic Material Matters in C9ORF72-Related ALS

Dutch Bros. Coffee Annual “Drink One for Dane” Day to Donate Proceeds to Muscular Dystrophy Association

Leading the Way: MDA’s critical support for people with ALS

New Forms of Genetic Testing Improve Diagnosis, Raise Questions

“Knowing, if not all, is almost all,” said Matthew Harms, a neurologist and neurophysiologist from Washington University in St. Louis, in his presentation on genetic testing for neuromuscular disorders at the 2014 MDA Clinical Conference, held in Chicago March 16-19.

Fierce Hope


Ray created “Fierce Hope” specifically for the MDA Art Collection. He began creating artwork after he was diagnosed with ALS in 2011. Ray uses pastels and holds them between two fingers on one hand guided with the other hand. Some of his artwork has taken as long as nine hours to complete. One of his favorite quotes is “I am not counting my days – I am making my days count.”

Raymond West

Full name: 
Mr. Raymond West
Raymond West
Amyotrophic Lateral Sclerosis (ALS)