MDA Leadership
Meet the passionate staff and Board who lead MDA’s efforts to serve families living with muscular dystrophy, ALS and related neuromuscular diseases through innovations in science and care.
Executive Leadership
President and CEO
Sharon Hesterlee, Ph.D.
Chief Development Officer
Ruth Ann Dailey
Chief Financial Officer
Pamela Kournetas
Chief Operating Officer and Chief Legal Officer
Henry Lanman
Chief Research Officer
Angela Lek, Ph.D.
Chief Marketing Officer
Morgan Roth
Executive Vice President, Healthcare Services
Nora Capocci
Executive Vice President, Community Engagement
Alicia Dobosz
Executive Vice President, Public Policy & Advocacy
Paul Melmeyer
Board of Directors
Governor Brad Henry
Chairman
Christopher Rosa, Ph.D.
Vice Chairman
Anjan Aralihalli
Director
Barry J. Byrne, M.D., Ph.D.
Director
John R. Costantino, Esq.
Director
Benjamin Cumbo, III
Director
Dan Fries
Director
Stephen Furnary
Director
Amanda Baze Hall
Director
John Howell
Director
Nancy Kindelan
Director
Louis Kunkel, Ph.D.
Director
Elizabeth McNally, MD, Ph.D.
Director
Hon. Robert Pipia
Director
Matt Plummer
Director
Charles D. Schoor, Esq.
Director
Tom Simon
Director
Marshall ("Mark") Smith, NACD.DC
Director
Lilian Wu, Ph.D.
Director
MDA Medical Advisors
The Muscular Dystrophy Association Medical Advisors provide expert medical and clinical guidance to support the organization’s mission, programs, and strategic priorities. Led by Chief Medical Advisor Dr. Barry Byrne, the advisory group includes Dr. Diana Bharucha-Goebel, Dr. John Day, Dr. Matthew Harms, and Dr. Julie Parsons.
The Medical Advisors help guide the MDA Care Center Network, review Care Center applications, advance standards of care, participate in strategic planning, and provide clinical expertise on mission-related initiatives including MDA Summer Camp, disease list reviews, public relations efforts, and other organizational priorities. Their role is advisory, and they serve as independent contractors to MDA.
