When I was in my early teens, I was having an ice cream at the mall with some friends, and suddenly I couldn’t move a muscle.
|Christine Swanson at the beach with her family|
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MDA leads the search for treatments and therapies for inherited and endocrine myopathies. The Association also provides comprehensive supports and expert clinical care for those living with inherited and endocrine myopathies.
In this section, you’ll find up-to-date information about inherited and endocrine myopathies, as well as many helpful resources. This information has been compiled with input from researchers, physicians and people affected by the disease.
Here you will find information about six types of inherited myopathies (myopathies that can be passed from parent to child):
Here you also can find information on two noninherited myopathies caused by abnormal activity of the thyroid gland:
As you learn more about inherited and endocrine myopathies, always remember that you’re not alone. MDA is here for you and your family, standing ready to provide help and hope. There is a place for you in the MDA inherited and endocrine myopathy community.
MDA provides support by:
Once you sign up with your local MDA office, you’ll begin receiving MDA’s quarterly Quest magazine, where you’ll find news about research and health care, helpful products and devices, social and family issues, and more.
In addition, MDA will keep you informed through e-alerts, educational publications and speakers, seminars, videos and newsletters.
Please know that there’s a role for you in the fight against inherited and endocrine myopathies. The MDA community is strong and dedicated, with opportunities for involvement at all levels, such as:
Please know that there’s an important role for every member of the inherited and endocrine myopathy community. We urge you to contact your local MDA office to learn more.
An inherited or endocrine myopathy diagnosis doesn’t mean an end to your hopes and dreams. Changes, challenges and adaptations lay ahead, but also opportunity, fulfillment, joy and hope for a future free of inherited and endocrine myopathies.
Never forget that MDA is here to help.