Support Groups

"MDA provides a multitude of support groups. We’re able to sit down in a private setting and share our experiences with other families. By doing so, we realize that we’re not alone and we actually realize that if we can start sharing information with others and helping others, that we also can help ourselves." — Jeff, father of a child with myotonic muscular dystrophy

In communities nationwide, MDA offers support groups — including many that are disease-specific and others that are topic-focused, such as groups for caregivers, parents, etc. In the support group setting, you and/or your loved ones can share everything from tears and laughter, to medical and financial tips, and travel stories and recipes. More importantly, you’ll find a sense of fellowship and a connection to each other’s humanity that strengthens everyone involved.

The families you meet at MDA clinic and support groups are living this experience with you. Lean on them, learn from others, and call them when you need to talk or need help.  You’ll find others leaning on, and learning from, you too. Your local MDA staff can let you know about the types of support groups offered in your area, as well as meeting schedules and locations.

Support and fellowship also are available through MDA’s myMuscleTeam care coordination tool, MDA Chats and MDA's interactive Facebook page.