BREAKING NEWS: New drug approved by the FDA for Duchenne muscular dystrophy. Learn more about this new treatment option.

Innovations in Care

We provide access to support and programs that empower the lives of people living with neuromuscular diseases.

Next Steps Seminars

MDA Next Steps Seminars offer timely information and resources related to major life changes including receiving a new diagnosis and transitioning to adulthood. These seminars are delivered virtually over multiple days and provide opportunities for attendees to meet in small groups for facilitated discussions and support. The goal of our Next Steps Seminars is to empower individuals and families with the information they need to navigate the next steps in their journey with confidence. Companion materials will be provided in the mail to support attendees’ learning.

This program is provided at no cost, but registration is required, and space is limited. Registration is on a rolling basis. Once registered, you will be contacted by a member of the Community Education team to let you know the time and date of the next session.

Register here


Coming in 2024

  • Newly Diagnosed – Adults: April 23-24, 2024, 5-8 PM ET
  • Transition to Adulthood: May 7-8, 2024, 5-7 PM ET and May 14-15, 2024, 5-7 PM ET
    SESSION FULL Registration is now open for the next transition to adulthood session, date TBD.
  • Newly Diagnosed – ALS: August 27-28 5:00-8:00 pm ET
  • Newly Diagnosed – Pediatric: Q4

For sponsorship opportunities or question about these programs, please email MDAengage@mdausa.org or call 1-833-ASK-MDA1 (1-833-275-6321) and we’ll be happy to help!