Guidebooks

Updated

A Teacher's Guide to Neuromuscular Disease

Designed for your children's teacher, this manual addresses types of muscle diseases and their impact on learning ability; and how a student with a muscle disease affects the classroom. It also offers additional teacher resources and more.

April 2008

Everyday Life with ALS: A Practical Guide

In large type and with many illustrations, this manual contains extensive advice and support for those living with ALS and their caregivers. Step-by-step instructions, checklists and additional resources are included.

March 2010

Facts About Genetics and Neuromuscular Diseases

This booklet examines what genetic disorders are, how they are inherited, the pros and cons of genetic testing and more.

December 2009

Learning to Live with Neuromuscular Disease: A Message for Parents

This booklet is for parents who've recently learned their child has a progressive muscle disease. Topics include: Facing your feelings, the other children in the family, single parenting, reaching out and teaching independence.

November 2011

MDA ALS Caregiver's Guide

This essential manual addresses the whole spectrum of caregiving for people with ALS, from respiration and nutrition to financial and legal concerns. It also contains an extensive section on finding caregiving help.

March 2013

Road Map to Independence for Young Adults

This book assists teens, young adults and their families as they prepare for and transition into adulthood. It is designed to foster discussion within the MDA clinic setting and the parents/guardians and teen(s) with a neuromuscular disease.

August 2009