If you are reading this, it’s probably because you or a loved one has just received a very bewildering diagnosis: mitochondrial myopathy. What is a mitochondrial myopathy, and what does the term mean?
|The Kelly family at the MDA Labor Day Telethon|
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MDA leads the search for treatments and therapies for mitochondrial myopathies. The Association also provides comprehensive supports and expert clinical care for those living with mitochondrial myopathies.
In this section, you’ll find up-to-date information about mitochondrial myopathies, as well as many helpful resources. This information has been compiled with input from researchers, physicians and people affected by the disease.
This disease information center covers nine of the most common types of mitochondrial myopathies and encephalomyopathies:
As you learn more about mitochondrial myopathies, always remember that you’re not alone. MDA is here for you and your family, standing ready to provide help and hope. There is a place for you in the MDA mitochondrial myopathy community.
MDA provides support by:
Once you sign up with your local MDA office, you’ll begin receiving MDA’s quarterly Quest magazine, where you’ll find news about research and health care, helpful products and devices, social and family issues, and more.
In addition, MDA will keep you informed through e-alerts, educational publications and speakers, seminars, videos and newsletters.
Please know that there’s a role for you in the fight against mitochondrial myopathies. The MDA community is strong and dedicated, with opportunities for involvement at all levels, such as:
Please know that there’s an important role for every member of the mitochondrial myopathy community. We urge you to contact your local MDA office to learn more.
A mitochondrial myopathy diagnosis doesn’t mean an end to your hopes and dreams. Changes, challenges and adaptations lay ahead, but also opportunity, fulfillment, joy and hope for a future free of mitochondrial myopathies.
Never forget that MDA is here to help.