When my husband, Terry, and I learned that our son Mike, then age 4, had Duchenne muscular dystrophy, we were devastated. Immediately, our hopes and dreams for Mike — playing sports, graduating high school, having girlfriends — all changed. That was 20 years ago.
|Suzan Norton, with her son, Mike|
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MDA leads the search for treatments and therapies for Duchenne muscular dystrophy (DMD). The Association also provides comprehensive supports and expert clinical care for those living with DMD.
In this section, you’ll find up-to-date information about Duchenne muscular dystrophy, as well as many helpful resources. This information has been compiled with input from researchers, physicians and people affected by the disease.
As you learn more about DMD, always remember that you’re not alone. MDA is here for you and your family, standing ready to provide help and hope. There is a place for you in the MDA DMD community.
MDA provides support by:
Once you sign up with your local MDA office, you’ll begin receiving MDA’s quarterly Quest magazine, where you’ll find news about research and health care, helpful products and devices, social and family issues, and more.
In addition, MDA will keep you informed through e-alerts, educational publications and speakers, seminars, videos and newsletters.
Please know that there’s a role for you in the fight against Duchenne muscular dystrophy. The MDA community is strong and dedicated, with opportunities for involvement at all levels, such as:
Please know that there’s an important role for every member of the DMD community. We urge you to contact your local MDA office to learn more.
A DMD diagnosis doesn’t mean an end to your hopes and dreams. Changes, challenges and adaptations lay ahead, but also opportunity, fulfillment, joy and hope for a future free of Duchenne muscular dystrophy.
Never forget that MDA is here to help.