Mission Statement
Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. For 75 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families.
MDA's mission is to empower the people we serve to live longer, more independent lives.
Our History
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Meet Ira: MDA National Ambassador
Meet Ira: MDA National Ambassador
"By utilizing the journey of my life, the passion and spirit of MDA, and the power of voice, I’m of the belief that my role as an Ambassador offers the opportunity to be a part of true change."
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Meet Lily: MDA National Ambassador
Meet Lily: MDA National Ambassador
My hope is to inspire others to embrace a positive outlook, even in the face of adversity. By finding strength, resilience, and determination, we can overcome challenges and live life to the fullest.
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Summer Camp: The Best Week of the Year
Summer Camp: The Best Week of the Year
At MDA Summer Camp, kids with muscular dystrophy and related diseases can live beyond limits.
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Behind the Scenes: A Look at the Science and Research for New Treatments
Behind the Scenes: A Look at the Science and Research for New Treatments
"This field is going to continue accelerating and we’re going to have a major impact on many different types of muscular dystrophy over the coming years."
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My Gene Therapy Journey: The Bafus Family
My Gene Therapy Journey: The Bafus Family
"The Bafuses are optimistic about the impact of gene therapy’s ability to decrease the progression of Mason’s DMD, providing more time to be a happy, healthy, and active kid."
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MDA Research and Grants
MDA Research and Grants
MDA is funding a new generation of researchers, bringing innovations to usher in breakthroughs that will lead to treatments and cures for neuromuscular diseases.
Future focused. Community-led. Forward together.
MDA’s Community Advisory Task Force includes people from across the neuromuscular community who have taken time to share honest, thoughtful insight to help guide MDA’s work ahead. Their perspectives reflect different diseases and life stages, from childhood through older adulthood, and speak to what matters most as needs change: in care, connection, inclusion, and support.
MDA Resource Center: We’re Here For You
Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA programs are only available in the U.S.
