The Muscular Dystrophy Association is proud to serve the neuromuscular disease community through our research, health care services, advocacy and education programs. While much has been accomplished since MDA's inception, it's critical that MDA look to the future and work to ensure that the Association is working to fulfill our mission as effectively as possible by being responsive to the changing research and health care landscapes, continuing to accelerate progress for development of therapies, and meeting important needs of those whom we have the honor to serve.
As an organization dedicated to serving families living with neuromuscular disease, it's important that we hear your views on how MDA can best deliver on our mission of providing help and hope. With MDA-funded research pressing forward at an invigorating pace and many promising clinical trials underway, MDA is committed to forging ahead in our search for lifesaving treatments. At the same time, we also know that neuromuscular diseases are complex conditions, and that services designed to assist and support those living with these disorders are critical — including expert clinical care, accurate and relevant information about living with muscle disease, transitional services for young people and more.
This survey provides you with an opportunity to tell us what parts of MDA's current programs you value the most and how we may be able to best serve you in the years ahead. The survey should take no more than 10 minutes to complete.
We hope that you are able to complete the survey and look forward to hearing from you.
If you have any additional comments about your experiences with MDA that are outside the scope of this survey or if there is anything that we can do to assist you at this time, please email firstname.lastname@example.org.
Thank you for taking the time to provide your feedback.