A strong family-student-teacher team is the best approach to managing neuromuscular disease’s effect on education. The ever-changing symptoms of these diseases require ongoing communication between school and home, so problems can be quickly solved or prevented from arising.
Generally, even in cases of severe disability, it’s best to educate students for a life of independence and self-support. Most of these children will grow up to have careers, families and contributing roles in their communities.
Increasingly, young adults with neuromuscular diseases graduate from college and want jobs. With an almost 70 percent unemployment rate among people with disabilities, a good education is an essential success tool.
Although each student has different needs, here are a few areas that may require particular attention and awareness:
These areas should be addressed in consultation with family, medical experts and school staff during the IEP process or as they arise: