Let’s be honest: There
aren’t many positive aspects to living with
a disability. I trip. I fall. Reality sucks. Life’s
miserable. Disability ruined my life and undermined
my independence.
These pessimistic thoughts dominated my life for
almost 11 years after I received a diagnosis of
Friedreich’s ataxia (FA) in 1994. But recently
I’ve come to realize that these negative aspects
distort the relatively few, but real, positive aspects
to having a disability.
 |
Phil
Bennett |
Disability has opened my eyes to the things that
are usually overlooked by others -— the selflessness
and caring that people regularly demonstrate.
Signs of Caring
I attend a university with a massive campus and
get around using a manual wheelchair. I must wheel
from one corner of campus to another in 15 minutes,
across streets and up elevators, praying that the
professor is later than I am — all without
an aide.
Complete strangers often offer a friendly push
in the right direction, sometimes all the way to
the front door of my classroom — even if it
makes them tardy for their own engagements. As I
roll toward the elevator, another student or sometimes
even a professor may dart past me and press the
elevator call button. Usually, they aren’t
even getting in themselves — they’re
going out of their way to save me time and effort.
I never even have to ask.
Complete
strangers often offer a friendly push in the
right direction — even if it makes them
tardy for their own engagements. |
California has very unpredictable weather, and
once it began to rain immediately after a class.
How was I going to get halfway across campus when
rain was coming down in buckets, I didn’t
have a raincoat or umbrella, and there weren’t
any shelters?
A couple of students happened to be sprinting across
the extensive courtyard huddled beneath a small
umbrella clutched tightly against the wind. When
they spotted me, they ran over and asked where I
needed to go.
The husband immediately thrust their umbrella into
my shaking wet hands and instructed me to hold it
over both of our heads as he pushed me across the
courtyard, up a ramp and into my building. After
we caught our breath, we exchanged introductions,
shook hands and went our separate ways — I
to class, he back into the rain to find his abandoned
wife.
Once I stopped to notice, I saw that my life was
full of examples like these…. The 12-year-old
girl who, without any sign from me, stopped eating
to open the heavy door of the pizza parlor. The
homeless man who helped my dad carry me in my wheelchair
up a long flight of stairs to catch a train.
Once, on an airplane, an abrupt knee spasm sent
my food tray flying all over a big gruff motorcycle
guy in the seat across the aisle. He never complained,
never swore, never even sighed — just scooped
off the sludge, called over the flight attendant
and said, "Can we get another chicken dinner
for this young man, please?"
Call it luck, coincidence or whatever you want.
I call it goodness, a sign of caring, a sign of
kindness.
Communication is Key
For a long time, I refused to think this way. I
despised it when people treated me like a "helpless
baby," asking if I needed help with rudimentary
tasks. I still can’t stand that paternalistic
treatment, and I still get it every day!
But I’ve learned these encounters don’t
feel paternalistic when both parties approach the
situation thoughtfully and respectfully. Helpers
shouldn’t be rude or patronizing, and —
even if I don’t think I need help
— I need to be appreciative of their offers.
They risked my frustration by offering assistance;
the least I can do is give my gratitude in return.
It all depends on communication. Once a sophomore
offered me a push to class. After I said I’d
appreciate the help, then she admitted
she "wasn’t sure we’re supposed
to do this." She was willing to give me a push
even before she knew if that would be a reasonable
thing to do!
This helped me understand the monumental importance
of good communication between people with and without
disabilities. The goodness in humanity is always
out there, but we need to use a degree of communication
to tap it.
So I get a free push, saving me a few calories.
But what do others get in return besides a tardy
to class or a drenched body? Sure, I give them a
nice smile and some words of appreciation, but they
could get that at a Burger King.
Perhaps it’s this: By being in a wheelchair,
I exemplify the perseverance it takes to get up
every morning, go to school, do homework and focus
on the future. Maybe seeing my perseverance —
and enabling it with their help — inspires
people to persevere against the obstacles in their
own lives.
The goodness
in humanity is always out there, but we need
to use a degree of communication to tap it. |
In addition, my disability not only allows me to
see the goodness in others, it encourages others
to act upon their goodness.
The Downside of Normalcy
A disability renders visible the goodness of humanity.
Sure, I want to walk again, I resent this disorder,
I want to rid the world of it ... but is its riddance
worth being blind to this goodness?
 |
|
Bennett,
skiing last winter |
|
In a way, this is almost a downside to normalcy:
"Normal" people don’t get to see
the face of humanity that we folks with disabilities
do.
I feel special and overjoyed when I get to an elevator
and the button already has been pushed for me, or
a stranger holds a door for me at the mall. That
feeling yanks me out of the pit of despair that
my disability puts me in, slaps me in the face,
and makes me remember that people do care,
that I still am loved, and that I’m
more than my disability has made me.
So, here’s the choice: Will you sulk about
the disaster that a disability wreaks upon your
life and dwell in the misery of its numerous negative
aspects? Or will you recognize the positive aspects
that it provides?
Choose wisely.
Phil Bennett, 21, lives in Fremont, Calif. He has
Friedreich’s ataxia, and attends San Jose
State University.
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