Control Systems: Different Ways of Driving
by Kathy Wechsler
If the standard joystick is no longer an option for driving your
power wheelchair, don't be discouraged. No matter what type of disability
you have, there's a wheelchair control system that can be configured
to help you operate your chair.
Finding the right wheelchair control system takes the specialized
knowledge that only a team of experts can offer, said Mike Mansfield,
a certified rehabilitation technology supplier (CRTS) and president
of Rehab Specialists in San Francisco.
Just as in buying a new wheelchair or fitting your existing one with
a new back or cushion, choosing a new control system requires the
help of a physician, a physical therapist (PT) or occupational therapist
(OT), and a reliable medical equipment supplier.
Ideally, the supplier should be certified through either the Assistive
Technology and Rehabilitation Engineering Society of North America
or the National Registry of Rehabilitation Technology Suppliers. (See
"Control System Resources.")
Tracie Cross of Adorno Mobility in Houston recommends contacting
your local MDA office for a list of reputable suppliers who are familiar
with muscular dystrophy.
What's Out There?
Almost all wheelchair manufacturers allow you to upgrade your chairs
control system, said Mansfield, who's worked with people served at
Stanford University's MDA clinic and the Forbes Norris MDA/ALS Research
Center.
Most power chairs by Permobil, Quickie, Invacare, 21st Century Scientific
and Pride come with standard electronics. But they also include the
option to upgrade the control box's electronics to suit your needs.
That means you can continue using your own chair and choose a driving
system from a range of driving arrays. Whether you select a system
controlled by head movement, breath, body heat or something else depends
on which part of your body has the most strength or control.
Armed with knowledge of the options on the market, you're ready to
talk to your PT or OT and equipment provider about getting evaluated
for a wheelchair control system.
Using Your Head
The term head array describes a device that lets you drive
your chair using only your head. These devices require some neck strength
to operate the switches and sensors placed in the padding of the chairs
headrest. Adaptive Switch Laboratories (ASL), Creative Rehab Associates
and Switch-It offer head array devices.
Jon Whitmer of Billings, Mont., has a head array device by ASL, with
three main switches in his headrest that activate the control box.
The switch in back tells the chair to go forward or reverse, and the
two side switches control left and right turns.
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| Jon
Whitmer drives his Permobil Chairman 2K with an ASL head array
device. The control system is mounted on the chair. (Whitmer uses
noninvasive ventilation during the day.) |
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Whitmer, 33, activates a light beam switch with his chin or tongue
to change modes (such as going from drive to tilt/recline) or put
the chair into standby.
Whitmer, who has Duchenne MD, has used a control system for nine
years. He recently purchased a Permobil chair with a new ASL device
that lets him activate switches with his head to operate the chair,
control the leg rests, elevate the seat, as well as tilt and recline.
"I'd recommend ASL. It seems to me that it's more user-friendly,"
Whitmer said. He said some other devices were covered with fabric
and harder to push, but "with the ASL head array, its right there,
you don't have to mash anything. You just have to get close."
Decisions, Decisions
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Steve
Lautzenhiser, a member of the Magitek team, makes final adjustments
on Roy Lemert's Magitek Drive Control System. Seat tilt and
recline actuators on Lemert's Invacare power chair are also
controlled by the Magitek system.
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Coming in all shapes and sizes, switches can be attached to any part
of your wheelchair so you can use your foot, toe, knee, trunk or shoulder
to send signals to the control box and drive your chair.
Or, sensors can be mounted on your eyeglasses, an earpiece or a special
headband, letting you drive by tilting your head. You can design a
custom control device with the help of ASL, Magitek, Stealth Products
or Whitmyer Biomechanix.
A Magitek system acts as a "joystick in space," said company
co-founder Steve Lautzenhiser. It works by placing miniature tilt
sensors on your head, hand, finger, foot or elsewhere. The sensors
can be moved, adjusted, or divided and placed in other locations.
Lautzenhiser says this system allows precise control of the wheelchair,
with more adaptability than other fixed-headrest based systems offer.
Activating the tilt sensors does require some physical movement.
"Our systems can accommodate a diverse set of applications for
solving difficult mobility challenges because the migratory tilt sensors
are fully proportional and very natural to use," Lautzenhiser
said.
Tash and Stealth Products also offer a variety of adaptable buttons
and switches.
TaDarius Moore of Nashville, Tenn., has spinal muscular atrophy and
maneuvers his wheelchair using small color-coded electric buttons
mounted on a tray in front of him. TaDarius, 9, has had his Jellybean
Drive System from Tash for four years.
He says he likes this system because it allows him to get around.
The Chin Is In
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Alan
Houghton uses a minijoystick with a Haims harness and a head
switch that came with his Permobil wheelchair.
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Chin controls cover a large range of products. You can get a cup-shaped
joystick handle that attaches to your chair just below your chin or
a minijoystick that mounts midline.
A harness system or brace can hold the joystick where you need it.
The Haims Harness System, made by Permobil, can also accommodate a
joystick to be used with the lips or tongue.
If you can only perform minimal movements, your best bet may be a
minijoystick. This small and compact joystick can be placed anywhere
on your chair for maximum accessibility the armrest, legrest or
anywhere else you have movement.
Manufactured by HMC International and offered by ASL, Pride, Permobil
or Invacare, the minijoystick makes it easy to maneuver your chair
using your finger, hand, chin or tongue.
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The
chin mount minijoystick from ASL can be placed right where you
need it.
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Alan Houghton of New York has Lou Gehrig's disease, and he uses his
chin to manipulate a minijoystick attached to a brace around his neck.
With this device, he can drive and also control his chairs other functions
such as adjusting his legrests. A button attached to the right side
of his headrest allows him to change modes.
"I like that [this system] doesn't take a lot of energy, but
allows for a lot of flexibility," said Houghton, 57, a cancer
researcher and oncologist at Memorial Sloan-Kettering Cancer Center.
"It makes it so that I can get around and work all day."
Hot Air and Other Cool Stuff
If your lungs are strong and aren't easily fatigued, you can go with
a sip-and-puff device. By taking sips of air or blowing into a strawlike
tube, you tell the wheelchair what to do. Switch-It, Origin Instruments
and Therafin offer sip-and-puff systems.
New Abilities Systems makes a tongue-touch keypad that fits in the
roof of your mouth.
Stealth Products, ASL and Switch-It make proximity switches, which
are triggered by your body heat. You don't even have to touch the
switch to activate one-step commands such as on/off.
For those with the most limited movement, fiber optics from ASL and
Switch-It may be the best choice. These tiny fibers are extremely
sensitive to the lightest touch.
Finger-touch keypads from PG Drives Technology and Switch-It also
allow driving with the movement of your finger.
You can even get a joystick mounted on the back of your chair for
a caregiver to operate.
"The sky's the limit," said Cross of Adorno Mobility about
the current options.
KEMPF manufactures a voice-operated wheelchair control system. With
the KATALAVOX, you can also use a throat microphone or a headrest
microphone to pick up your vocal vibrations. This is a new product
thats still being perfected, Mansfield said.
Future technology promises that you can operate your chair with your
thoughts by wearing a skullcap covered by electrodes to monitor the
electrical activity of your brain.
Planning and Paying
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TaDarius
Moore drives his power chair with small color-coded electric
buttons from Tash.
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As you consider your choices for a wheelchair control system, its
important to keep the lines of communication open, said Cross, an
assistive technology provider (ATP) with nine years experience as
a PT.
It's also a good idea to plan ahead for future needs, especially
if your disease is progressive. Getting the equipment before you absolutely
need it can keep you from being stuck with no means of mobility.
Specialty control systems aren't cheap. They can range in price from
$1,500 to $8,000 for an extremely complicated system.
If an alternative driving device is deemed medically necessary, your
health insurance should cover it. Medicare or Medicaid may help pay
for these products if they're deemed medically necessary. If you're
adding a control system to your existing chair, MDA will pay up to
$500 every year for repairs or modifications.
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Using
the Gatlin tray with fiber optics by ASL, you can drive your
wheelchair with a finger.
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CONTROL SYSTEM RESOURCES
Control Systems
Adaptive Switch Laboratories
(800) 626-8698
www.asl-inc.com
Creative Rehab Associates
(830) 693-6030
Dynamic Controls
(440) 979-0657
www.dynamic-controls.co.nz
HMC International
www.hmc-products.com
KEMPF-KATALAVOX
(800) 255-6174
www.katalavox.com
Magitek
(800) 347-9928
www.magitek.com
New Abilities Systems
(800) 829-8889
www.newabilities.com
Origin Instruments
(972) 606-8740
www.orin.com
PG Drives Technology
(714) 712-7911
www.pgdt.com
Stealth Products
(800) 965-9229
www.stealthproducts.com
Switch-It
(800) 376-9888
www.switchit-inc.com
Tash
(800) 463-5685
www.tashinc.com
Therafin
(800) 843-7234
www.therafin.com
Whitmyer Biomechanix
(877) 944-8246
www.whitbio.com
Wheelchair Manufacturers
Invacare
www.invacare.com
Quickie Wheelchairs
www.quickie-wheelchairs.com
Permobil
www.Permobilusa.com
Pride
www.pridemobility.com
Sunrise Medical
www.sunrisemedical.com
21st Century Scientific
www.21stcenturyscientific.com
Medical Equipment Certifying Agencies
Assistive Technology and Rehabilitation Engineering Society of North
America (RESNA)
www.resna.org
National Registry of Rehabilitation Technology Suppliers (NRRTS)
www.nrrts.org