The Money Trail
Where Is All the Money?
by Christina Medvescek
Money cant buy love, but it can buy a
van with a lift and a remodeled bathroom. Money is the root of all evil
and of all wheelchair ramps. Money cant buy good health but poor health
is easier to take when youve got money.
So where is all the money? Alas, this
story doesnt contain the complete answer. But it does offer a variety
of ways and places to look for little pots of gold.
Learn the Money Mindset
Looking for money takes faith. Youve
got to believe youre going to get some. If you get caught up in the
reasons you cant find money — too busy, too worn out, too confused,
too disabled, too poor, too "rich" (see "From
Where I Sit: The Middle-Class Trap") — you wont be able
to sustain the search. "Our doubts are traitors and make us lose
the good we oft might win," warned Shakespeare.
Instead, adopt the money mindset recommended
by Victor Boc in his unconventional finance book How to Solve
All Your Money Problems Forever (Perigee Books, 1978). Create
a precise image of what you want and then persistently see yourself
having it. No matter how twisted the path, keep believing youll get
there.
When a funding request is turned down,
see the word "no" as a detour, not a dead end. "Dont
take no as an answer," emphasizes Mike Buche, 38, of Oakdale, Minn.,
who had to acquire a power chair and a modified van because of his limb-girdle
muscular dystrophy (LGMD).
"Be vocal but not disruptive. Yelling,
screaming, hollering doesnt do any good. Just stay with it. Call a
different person and call a different one. Talk to people whove done
it in the past. Get your voice out there, get your name out there, then
you will be recognized. Theres funding out there to be had, but people
dont know it."
Gather Money Here and
There
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Mike Buche |
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About two years ago, when Buche ("Boo-shay")
accepted the fact that he needed a power chair, he required some specific
equipment and modifications to keep working as manager of an auto body
shop. To drive to work, he needed a modified van: $64,500. Once there,
he needed a stand-up power chair: $27,000. In his office, he needed
a power door opener ($2,800) and a wider bathroom doorway ($2,000).
Not having a spare $96,300, Buche figured
hed gather money and help from a variety of sources. "I didnt
look at the finances of it," he said. "My thought was that
it would make my life better, no matter what it cost. I had confidence
it would all work out somehow."
First, Buche looked to health insurance
and government programs. His insurance agreed to pick up half of the
cost of the chair. Minnesota Vocational Rehabilitation Services agreed
to pay 68 percent of total expenses for the chair, van conversions and
building modifications. This meant Buche needed to cover 32 percent
of the van and office modifications, 32 percent of the remaining costs
of his wheelchair, plus the full cost of a basic van — roughly
$45,000.
So Buche went looking for money. He convinced
his insurance company to reclassify his chair "from a K11 to a
K13," indicating greater medical necessity. This increased the
insurance coverage from 50 percent to 80 percent of the cost. MDA provided
$2,000 toward the purchase of his chair. His employer offered to pay
for the power door opener and door widening. Buche traded in a vehicle
and financed $23,000 to buy a new Ford E150 van. A Ford Motor Company
rebate shaved $1,000 off the cost of van modifications.
He was now short only $6,000 to $8,000.
Thats when a group of friends stepped
up and offered to put on a fund-raiser. Initially Buche and his wife,
Laura, said, "thank you but no," but his friends insisted.
The group rented a hall, got a band, served food and cocktails, and
held a silent auction of donated items. The event raised $21,500, which
paid off the rest of Buches assistive equipment costs and took a big
chunk out of his van loan.
Buche admits it was tough letting his
friends raise money for him, but he urges others not to discount that
option. "People are willing to give, they really are."
At the end, his out-of-pocket share of
the initial $96,300 came to around $10,000 for his van, which he financed.
"But thats nothing, because my life is unbelievable now compared
to before I got the wheelchair and van," he says.
Beat the Bushes
Last year, Anneliese Villegas also needed
to raise funds to buy an accessible van for her son Raymon, 10, who
has Duchenne muscular dystrophy (DMD). Unlike Buche, Villegas couldnt
count on a government program and a large group of fund-raising friends
— just herself, a friend and plenty of moxie.
Villegas, of Ashland, Ore., figured the
family budget could handle about $200 a month in payments. She started
her money hunt with this figure in mind.
Luckily, she wasnt entirely new to fund
raising. Several years earlier she had persuaded local lumber companies
to donate $1,000 in materials for a wheelchair ramp. She had an idea
that if she asked enough sources, she would get what she needed.
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Raymon Villegas in his new van |
First she checked with state agencies,
but "we either didnt qualify or they didnt fund what we needed,"
she says. She wrote to big corporations, even a talk show host, but
nothing came in. "Finally my girlfriend said lets open up a donation
account at the bank and focus on the community."
Villegas estimates she spent about $150
on local fund raising. She made up fliers with a picture of Raymon and
an explanation of why he needed a van, and posted them in laundromats,
grocery stores and bulletin boards all over town. She and her friend
combed the Yellow Pages for local businesses and sent them letters.
They took their appeal to every potential source they could think of.
A big break came when the local newspaper
ran a front-page article about their quest. "Thats when people
began to give," Villegas says. "We would get $10 donations
with little notes. A variety of people who had known about us now had
something to give to, and gave $100 checks."
Her small church raised $2,000 by taking
a special collection. Her parents gave several thousand. Within three
months, $10,000 came in.
Villegas found a 1996 Ford Econoline commercial
van for $13,000. Adding a lift came to about $5,500. After donations,
her payments came to $200 a month.
Villegas discovered several successful
strategies in her search.
Smaller local businesses often are more
generous than the larger ones.
Tell people exactly what you plan to get.
For example, when approaching the lumber companies, she took a copy
of the plans for the ramp, with all the materials outlined.
Dont ask for the whole amount. "With
the lumber companies, I asked if they would donate a portion, like four
4-by-8s."
Several people suggested she hold a raffle
at the local stock car racetrack. "Apparently, racetracks are renowned
for helping with those kinds of things," she said, adding she never
tried this option because she reached her goal.
Dont be afraid to ask. The difference
between success and failure often is your ability to keep asking.
Dont give up. "Basically,"
she says, "you work your fanny off."
Leverage Your Resources
When Mark Reimans amyotrophic lateral
sclerosis (ALS) required him to get a power chair a little over a year
ago, a friend offered to write a letter to raise money for a van. "But
we didnt want people to give us money," says Marks wife, Julie.
Instead, the Everett, Wash., couple decided
to use money they didnt have yet — the payoff on Marks life
insurance policy.
"In the letter we said what we needed
was a loan. We would pay them back from Marks life insurance after
he was gone."
The appeal raised $25,000. Some people
gave money outright; Julie will repay the rest when the policy pays
off. (Mark passed away on April 29.)
Julie took the $25,000 to a dealership
that specializes in accessible vans. There was only one van on the lot
that would suit Marks 6-foot-plus height — for $36,000.
"I told them this is how much money
we have, plus I can pay $100 a month for as long as it takes to pay
off the rest. They said yes. We got a 2000 Dodge Caravan and it was
absolutely perfect," Julie says. "This really saved us in
the last year."
The Reimans also needed personal attendant
care. The family had a Share the Care group (an organized group of volunteer
caregivers). But as his ALS progressed, Marks needs outstripped the
volunteers ability. This time the couple leveraged the money in their
home. Refinancing gave them funds not only for caregiving, but also
for other pieces of adaptive equipment not covered by insurance.
Think Big
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Stephen Smith |
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For pure creative energy, few people can
beat Stephen "Hurricane" Smith. A professor in the M.B.A.
in Leadership program at Franklin Pierce College in Rindge, N.H., Smith,
56, is known for his passionate approach to teaching business students.
When he received a diagnosis of ALS, he applied that same whirlwind
enthusiasm to his own case.
Smith knew that sooner or later he would
need to quit work, meaning a 40 percent income drop and loss of his
work health insurance. He knew he was going to need a power chair, van,
home modifications, communication device, adapted computer software,
other assistive devices, plus caregiving help. He also would need to
fund vitamin supplements not covered by insurance. He decided he had
to get busy covering those needs while he could still walk and talk.
"I figured I was going to need $200,000
right off the bat," he says, for equipment and modifications and
to create a revenue-producing business, because "you cant keep
fund raising forever."
Smith and some of his students created
a nonprofit organization, then designed a multilevel marketing plan
"kind of like Amway," he explains. "You get some hard
workers at the top and then build a pyramid below them." At the
top are 15 people charged with finding 100 Cycloneers — people
who will commit to raising $2,000 each for Smiths fund.
A Cycloneers job should be easy, Smith
says. "They can call 20 friends and say, Come on over for a wine-and-cheese-tasting
party which will cost you a $100 donation, and heres why. Boom —
their total involvement is done in a weekend."
Volunteers who cant make that level of
commitment are invited to become Blusteroons, who help out however they
can: giving money, selling Smiths fund-raising cookbook or decorative
pin, or donating items to sell in his virtual yard sale. The cyber yard
sale, located on his Web site, www.stephenhurricanesmithfund.org,
sells donated antiques and used items. A local consignment shop also
sells items donated for his fund.
Smiths goal is to create a business,
such as importing unique goods to sell on the Internet. In addition
to funding his ongoing needs, he hopes this business will generate seed
money to spread among others coping with ALS.
"I want to create a business model
that people with ALS can use to create their own revenue-producing business,
and lend them seed money to get started," he says. "In this
way people can have their own cash-generating machine and wont have
to rely on donations from year to year."
Smith fully expects to find the funds
he seeks.
"This approach will be very successful,"
he says confidently. "My advice to people is to be creative. You
cant piddle around. You have to think huge."
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