MDA Is Information

MDA is an excellent source of current, accurate and practical information about all the diseases in its program, and about living with a neuromuscular disease. Information is available in print, video and online.

MDA website

This site contains thousands of pages of in-depth information, including:

• Information about each disease in MDA’s program, explaining the underlying biology, symptoms, interventions, inheritance patterns, current research and other relevant information
• News updates on research advances and health care issues
• Searchable back issues of MDA's print and onine magazines (Quest and the MDA/ALS Newsmagazine)
• Printable versions of all MDA publications
• State-specific resource guide and links to nationwide resources
• Advocacy information about pending legislation relevant to the MDA community
• Information about clinical trials and MDA research grants
• Information about MDA services, programs, resources and spokespeople
• Contact information for all MDA clinics and local offices
• Tools to help you get involved in the fight against neuromuscular disease
• Library of expert-hosted webinars on topics of importance to the MDA community
• Information for young adults living with neuromuscular disease through MDA's Transitions Center

MDA/ALS Newsmagazine (alsn.mda.org)

This award-winning online publication features research news and analysis, blogs about lifew with ALS and monthly feature stories. It also provides practical information for individuals and families living with ALS.

Quest magazine (quest.mda.org)

This award-winning quarterly publication is free to those MDA serves. Each issue contains articles about research, health and living with muscle disease, including parenting, caregiving, independent living, helpful products and strategies, legislation and profiles of interesting people. Also, the online magazine site offers everything in the print magazine, up-to-the-minute research news and more.

Other MDA publications

Visit MDA's disease pages for a concise, informative overview of each of the more than 40 diseases in its program. Other publications include detailed guidebooks for caregivers, parents and teachers, and booklets about coping with medical and daily living challenges. All publications are free to those served by MDA and can be downloaded online or obtained through your local MDA office.

Videos

MDA offers several professionally produced videos covering medical issues of interest to people with muscle diseases. These include:

• With Hope and Courage: Your Guide to Living with ALS
• Breathe Easy: A Respiratory Guide for People Living with Neuromuscular Diseases
• Breath of Life (video for medical professionals)

"One of the things that we're really keeping up on is the status of research. That's a big deal for us, and there's always updates on research that come through either Quest magazine or the MDA website." — Bill Stehling, Arizona, parent of a child affected by Duchenne muscular dystrophy

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