Advocacy is a way for parents to set a powerful example for their children by showing them that their rights are important, and that individuals who speak up are capable of creating change.
MDA’s advocacy program provides a unified voice for the hundreds of thousands of Americans affected by neuromuscular diseases. MDA advocates make a difference to future generations by helping shape governmental decisions in such areas as public policy and research advancement, as well as raising public awareness of the concerns and priorities of our community.
MDA’s advocacy program provides practical ways for busy parents to become involved through its “Take 5!” initiative.
"Take 5!” means that becoming an active, effective participant in the democratic process can be as simple as taking just five minutes to contact elected officials in Congress about legislation affecting the MDA community. To start, go to MDA’s advocacy home page to find specific information about relevant legislative issues, and detailed materials to help you easily advocate by letter, email or phone. By registering as an MDA advocate, you will receive email updates on policy and legislation that may impact your family.
Thanks to medical advances, many children with pediatric diseases now live well into adulthood. This “transition” from child to adult can raise new challenges for youth and families. MDA’s transitional services program works to identify the needs of our young adult community, and then to identify the necessary supports and services needed to get past barriers.
Through its national advocacy program, MDA is working to support independent living, and encourage young people to pursue their hopes and dreams for the future. Learn more about transition services and resources through the MDA Transitions Center, or by contacting your local MDA office (800-572-1717).
Together, our voices are strong. Together, we are breaking barriers and building successful futures.