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The Muscular Dystrophy Association offers a vast array of services to help you and your family deal with myotonic muscular dystrophy. The staff at your local MDA office is there to assist you with services including:
- a nationwide network of hospital-affiliated clinics staffed by top neuromuscular disease specialists
- MDA summer camps for kids with neuromuscular diseases
- professionally facilitated support groups for those affected, spouses, parents or other caregivers
- assistance with purchase and repair of wheelchairs, leg braces and communication devices
- evaluations for physical, occupational, speech and respiratory therapy
- flu shots to help protect the respiratory system
- equipment loan closets
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MDA’s public health education program helps you stay abreast of research news, medical findings and disability information, through educational speakers, seminars, videos, newsletters and more. Be sure to ask your local office for some of MDA’s latest booklets, including “Services for the Individual, Family and Community” and “Facts About Genetics and Neuromuscular Diseases.”
MDA’s Web site at www.mda.org offers thousands of pages of valuable information, including news and online chats. MDA also has publications geared toward children, and many items available in Spanish.
Everyone registered with MDA also receives Quest, MDA’s award-winning national magazine. Quest publishes detailed articles about research findings; medical and day-to-day care; helpful products and devices; psychological, social and family issues related to living with a disability; and much more.
If you have any questions about MMD, someone at MDA will help you find the answers.
Facts About Myotonic Muscular Dystrophy
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