On the cover: Amy Dunaway-Haney of South Padre Island, Texas, was found to have limb-girdle MD at age 8 and began using a wheelchair in her teens. Now married, she teaches high school Spanish and has been nationally honored for her teaching and as the 2003 recipient of the MDA National Personal Achievment Award.Dear Friends
What is Limb-Girdle Muscular Dystrophy?
What are the forms of limb-girdle muscular dystrophy?
How fast does LGMD progress?
What happens along the way?
What's not affected in LGMD?
What tests are used to diagnose LGMD?
Is it important to find out what genetic type of LGMD a person has?
Can special diets help in LGMD?
Are there any special exercises that can help?
Known Forms of Limb-Girdle Muscular Dystrophy
Does it Run in the Family?
MDA's Search for Treatments and Cures
MDA is Here to Help You |
MDA is Here to Help You
The Muscular Dystrophy Association offers a vast array of services to help you and your family deal with LGMD. The staff at your local MDA office is there to assist you in many ways. The Association’s services include:
- nationwide network of clinics staffed by top neuromuscular disease specialists
- MDA summer camps for kids with neuromuscular diseases
- help with obtaining durable medical equipment through its national equipment loan program
- financial assistance with repairs to all types of durable medical equipment
- annual occupational, physical, respiratory and speech therapy consultations
- annual flu shots
- support groups for those affected, spouses, parents or other caregivers
- online support services through the e-community myMDA and through myMuscleTeam, a program that helps recruit and coordinate in-home help
MDA’s public health education program helps you stay abreast of research news, medical findings and disability information through magazines, publications, educational speakers, seminars, videos and newsletters.
MDA’s Web site at www.mda.org contains thousands of pages of valuable information, including disease specifics, research findings, clinical trials and past magazine articles.
Everyone registered with MDA automatically receives Quest, MDA’s award-winning quarterly magazine. Quest publishes detailed articles about research findings, medical and day-to-day care, helpful products and devices, social and family issues, and much more. Other MDA publications can be found at www.mda.org/publications; many booklets are available in Spanish. Ask your local office for “MDA Services for the Individual, Family and Community” and for help with obtaining copies of other publications.
If you have any questions about LGMD, someone at MDA will help you find the answer. To reach your local MDA office, call (800) 572-1717.
|
Download PDF for printing
