Facts About Charcot-Marie-Tooth & Related Diseases	Updated December 2009
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For the Spanish version of this publication, click here: En Español

On the cover: TyKiah Wright of Columbus, Ohio, has been affected by CMT since childhood. Now 31, she earned bachelor’s and MBA degrees from Wright State University in Dayton. In 2001, she established the WrightChoice Intern Program, which helps minority students and students with disabilities find internships and jobs.

Dear Friends What is Charcot-Marie-Tooth Disease? What causes CMT? What happens to someone with CMT, and how is it treated? What are the different types of CMT? How is CMT diagnosed? Does it Run in the Family? MDA’s Search for Treatments & Cures MDA is Here to Help You

MDA is Here to Help You

The Muscular Dystrophy Association offers a vast array of services to help you and your family deal with CMT. The staff at your local MDA office is there to assist you in many ways. The Association’s services include:

• nationwide network of clinics staffed by top neuromuscular disease specialists
• MDA summer camps for kids with neuromuscular diseases
• help with obtaining durable medical equipment through its national equipment loan program
• financial assistance with repairs to all types of durable medical equipment
• annual occupational, physical, respiratory and speech therapy consultations
• annual flu shots
• support groups for those affected, spouses, parents or other caregivers
• online support services through the e-community myMDA and through myMuscleTeam, a program that helps recruit and coordinate in-home help

MDA’s public health education program helps you stay abreast of research news, medical findings and disability information through magazines, publications, educational speakers, seminars, videos and newsletters.

MDA’s Web site at www.mda.org contains thousands of pages of valuable information, including disease specifics, research findings, clinical trials and past magazine articles.

Everyone registered with MDA automatically receives Quest, MDA’s award-winning quarterly magazine. Quest publishes detailed articles about research findings, medical and day-to-day care, helpful products and devices, social and family issues, and much more. Other MDA publications can be found at www.mda.org/publications; many booklets are available in Spanish. Ask your local office for “MDA Services for the Individual, Family and Community” and for help with obtaining copies of other publications.

If you have any questions about CMT, someone at MDA will help you find the answer. To reach your local MDA office, call (800) 572-1717.

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