QUEST
NEEDS YOUR HELP!
Quest readers like reading about real people facing the same challenges they face. Please share your experience and wisdom related to the topics listed below. Your contribution will help others living with neuromuscular diseases.
To respond to any of the topics below, send us your name, age, neuromuscular diagnosis, phone number, e-mail address and a short explanation. This information will be kept confidential, and we'll get in touch with you about an interview. E-mail publications@mdausa.org or write to MDA Publications, 3300 E. Sunrise Dr., Tucson, AZ 85718
THANK YOU FOR SHARING YOUR
EXPERIENCES WITH OTHERS!
TOPICS:
- Experiences with Medicaid buy-in programs
- How have you persuaded commercial businesses to comply with the ADA?
- Any conflict between your ADA rights and your homeowner association regulations?
- What are the best fields for people with disabilities to study in college
- Helpful tax deductions for people with disabilities
- Experience with Medicare Advantage Plans, Medicaid or SCHIP programs
- Individual Education Plans (IEPs) – how did you get assistive equipment for your child?
- Seeking Supplemental Security Income - what happens when a child ages out of the Early and Periodic Screening, Diagnostic and Treatment (EPSDT)?
- Obtaining home health care - finding and paying for caregivers
- Equipping vehicles with external wheelchair lifts
- How did you convince your insurance company to pay for the assistive technology you need?
- Sponsoring a caregiver from a different country – how did you do it?
- Home Sweet Home (reply by June 1):
What to consider when buying a more accessible house
Minor adaptations that make life easier
Home ownership for people with disabilities — Where do you start? What help is available?
Finding financial help for home accessibility projects
Designing a ramp that looks good, works great
- Home-based virtual careers & telework
- How has Voc Rehab helped you?
- Great gift ideas for people with muscle diseases
We’re ALWAYS Looking For –
FROM WHERE I SIT– This first-person opinion column runs at the back of every issue of Quest. It shines a light on unique aspects of living with a neuromuscular disease. Limit: 1,000-1,200 words. Pays $300.
TECHNOLOGY CHANGED MY LIFE – What’s your story? Do you have a technological product (software, appliance, equipment, etc.) that you would like to review for the magazine?
THE ADA AND YOU – Examples of inaccessibility you’ve encountered; examples of ways in which you’ve helped create more accessibility
DO-IT-YOURSELF IDEAS - Have you figured out a low-cost, homemade way to do or make something essential at home or at work? Quest readers really want to know
HOW I DO THIS – As a person with a neuromuscular disease, or as that person’s parent or caregiver, you’ve encountered a number of uniquely difficult situations, such as bathing, transferring, using the bathroom on outings, traveling, cooking, eating, etc. What tricks, tips and strategies have you devised that make your life easier?
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