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QUEST Vol.16 No.2 April-June 2009
Check out the complete online version of Quest!
QUEST
Volume 16, Number 2
April - June 2009
COVER
Exercising with a Muscle Disease
This special 24-page package of articles (plus several of our regular columns) will help you determine if, and how, you should exercise.
FEATURES
DEPARTMENTS
Jerry Lewis Wins an Oscar
MDA National Chairman receives Academy’s Hersholt Humanitarian Award.
Exercising with a Muscle Disease
Warning: Read Me First!
Question & Answer
Profiles of People Who Exercise
Glossary of Exercise Terms
Effect of Exercise on Different Muscle Diseases
What Kind of Exercise Can be Done by …
Recommended Exercises in Muscle Disease
Caregiver Exercises
How Do You Feel About Exercise?
Exercising Will Over Despair
Center 8-page pull-out section:
SMA In Focus
The latest research information on spinal muscular atrophy
504 Plans
Is your plan meeting your child’s special needs at school?
The Quest for Fabulous Wheelchair Fashion
Fashion authority offers tips on looking your best, even when you’re sitting
On a Roll with the Strength Coach
Greg Smith is a man of many talents
Poised on the Cutting Edge
MDA Venture Philanthropy
Keeping in Touch
MDA Mailbag
MDA Matters
Research Updates
MDA Advocacy Report
To Boldly Go
Travel aids
Quest Tech
Tracking physical activity
As the Wheel Turns
Power sports chair care
Kid Quest
Power chairs offer exercise?
Rolling with Laughter
InfoQuest
Product Peeks
From Where I Sit
Am I disabled?
Research Updates
MDA clinic directors and researchers gather for three days of talks
Lamin defects may disrupt nerve-muscle signals in Emery-Dreifuss MD
Freeing MBNL1 from RNA trap seen as step toward MMD1 treatment
Researchers identify new modifier of SMA severity
SMA cell ‘reprogramming’ may aid search for treatment
Boosting defense mechanism helps SBMA-affected cells
Longtime MDA grantee was innovative researcher, compassionate physician
Two research teams treat CMD mice
MDA developing CMT research network
CLINICAL TRIALS AND STUDIES
Exon-skipping trial allowed dystrophin production in 10 boys with DMD
Enrollment complete for phase 2b study of DMD drug
Valproic acid to be tested in walking adults with SMA3
Researchers to determine SMA ‘biomarkers’
MDA grantee studying children with SMA not linked to chromosome 5
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