Swimming with the Fat Rat
Counselor Matt Lam (“Fat Rat”) gives a lift to camper Jeremy Susenbach during the 2005 MDA camp session at Camp Burnt Gin outside Columbia, S.C. All photos by Wayne Irby, a 29-year volunteer at the camp.

Megan Jennings rarely sits still at MDA summer camp. The 15-year-old is always on the move, nosing her wheelchair around her cabin’s porch singing along to “Grease,” or zipping over to the arts and crafts cabin to work on her costume for the dance, or playing hide-and-seek in the flat, lightly forested, shady spaces near the cabins.

If she does sit still, say while watching a power soccer game, playing cards or waiting to get into the pool, she restlessly powers her wheelchair footrest up and down, backscratcher in hand like a royal scepter.

Nighttime is Megan’s favorite time to get around. In the July darkness outside Columbia, S.C., she roams Camp Burnt Gin doing what she calls ahshwa walking, which she says comes from a French expression she heard once that means to wander without a plan.*

“It’s a very relaxing way to cool off,” she explains in her gentle drawl, adding, “I have a tendency of being a minimom. I like going around to all the cabins saying ‘g’night y’all.’”

*Note: It's possible that Megan's "ahshwa" comes from the French expression "au choix," which means "by choice." Or, perhaps it refers to another French term, "à joie," meaning "with joy."

There are really no opportunities for “ahshwa walking” back home in West Columbia, S.C., where Megan, who has spinal muscular atrophy (SMA), is an active high school student interested in everything from ballet to wrestling. As for having the freedom to simply do what she wants, when she wants — well as they say, that’s priceless.

That’s what MDA camp means to kids — freedom from barriers, regular life and being different. Camp also means being surrounded by a caring, goofy team of grown-up kids (MDA counselors and other volunteers) who have a blast making sure each camper has the best week of his or her year.

An Addicting Habit