Quest Magazine

MD-CARE Act Congressional Briefing Accelerates Reauthorization Momentum

"The energy in the room was high, and the mood was optimistic," said Annie Kennedy, MDA's senior vice president of advocacy, speaking about the Congressional briefing on reauthorization of the MD-CARE Act that she attended and helped to organize. The briefing was co-hosted by MDA and other muscular dystrophy organizations in Washington, D.C., on Feb.

High-Calorie Diet May Help in ALS

A study supported in part by MDA has found that a high-calorie, high-carbohydrate diet is safe and well-tolerated in late-stage amyotrophic lateral sclerosis (ALS), that it leads to moderate weight gain, and that it may slow disease progression.

SMA: Interim Results Look Promising for SMN-Raising Drug

Interim results of a phase 2 clinical trial to test multiple doses of the experimental drug ISIS-SMNRx in infants with spinal muscular atrophy (SMA) suggest that the drug is well-tolerated and may prolong ventilator-free survival.

MDA Chief Executive Implores Congress To Reauthorize MD-CARE Act

WASHINGTON, Feb. 25, 2014 — At a Congressional hearing today in Washington, the Muscular Dystrophy Association’s (MDA) chief executive briefed legislators on the enormous impact of the MD-CARE Act passed in 2001 and implored lawmakers to reauthorize this crucial legislation on behalf of the 100,000 Americans with muscular dystrophies.

Buy a Shamrock Today, Help Fight Back Against Muscle Disease

FSHD 'Xenograft' Mouse Model Developed

CMD, LGMD: Trial of Breathing Treatment Now Open

Help MDA Fight Back Against Muscle Disease; Sign Up for an MDA Muscle Walk Event Near You

New ALS Mouse Model Has Human FUS Mutation

Lowe's Teams with Customers to Support MDA Shamrocks Program

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