MDA Programs

Milestones in DMD Research

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MDA has funded Duchenne muscular dystrophy research since 1950, and has paid for more research into this disease than any nongovernmental agency. It also provides the most comprehensive services program of any nonprofit organization in the country.

Last Updated: 
Thu, 01/01/2009 - 20:06

R U Ready 4 MDA Camp?

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R u motiv8d?

Last Updated: 
Thu, 07/11/2013 - 18:54

MDA Awards $2 Million to ALS TDI

MDA has awarded $2 million to the ALS Therapy Development Institute (ALS TDI) in Cambridge, Mass., to help scientists complete the preclinical testing of four promising new compounds in ALS TDI's drug development pipeline. 

The grant, made through MDA's Augie's Quest ALS fundraising initiative, raises MDA's total grant contributions to ALS TDI to more than $23.4 million since 2007.

About the new funding

ALS TDI plans to test the four new compounds in the SOD1 ALS research mouse model.

The ADA Turns 20

Two decades ago, on July 26, 1990, President George H.W. Bush signed into law the landmark civil rights legislation called the Americans with Disabilities Act, intended to eliminate barriers for people with disabilities.

Two decades later, daily life has become much more accessible and fairer in many ways, not only for people with disabilities but for everybody. And yet — in physical accessibility, in employment discrimination, in general public understanding — there still is a ways to go.

Fitness Giant Bally Goes All Out for Augie’s Quest

For the third year in a row, Bally Total Fitness is pulling out all the stops to raise funds for MDA’s Augie’s Quest ALS research initiative.  

MDA Summer Camp

Last Updated: 
Tue, 11/01/2011 - 18:49

MDA Awards $21 Million for Research

In December 2009, MDA awarded $21 million in new research grants for neuromuscular disease research.

MDA's Scientific Advisory Committee (SAC) and Medical Advisory Committee (MAC) meet each fall and spring to review applications for research grants. Applications are scored on the basis of the capabilities of the applicant, the scientific merit of the project, and the proposal's relevance to developing treatments for the diseases in MDA's program. MDA's Board of Directors then reviews the recommendations of the MAC and SAC.

ALS Research: MDA Hosts 'Think Tank'

An all-day "think tank" to consider priorities for amyotrophic lateral sclerosis (ALS) research based on the latest information was conducted with ten of the leading scientists and clinicians in the field and senior MDA staff in Tucson, Ariz., on Saturday, Oct. 24, 2009.

Each specialist introduced his or her area of expertise and led an approximately 20-minute discussion, gathering input and answering questions from the other participants.

MDA Youth Peer Groups

Teens and young adults with muscle diseases are finding new opportunities to share their world with peers and gain valuable life skills through MDA’s support group program.

MDA already hosts some 240 support groups that provide practical help and emotional support to individuals and families around the country. But in recent years, the special needs of young adults have become more apparent, said Jennifer Lopez, associate director of MDA Health Care Services.

Speeding the Course of Clinical Trials

Speeding the course of clinical trials for Duchenne muscular dystrophy (DMD) and ALS (amyotrophic lateral sclerosis) is one of the main goals of MDA’s new clinical trial network – and the work already has begun.

In DMD ...

Investigators at five elite U.S. centers are working together to support trials and studies and collaborate on DMD-related projects. The centers are located at: