Daily Living

Medicare Wheelchair Benefit Partially Restored

Proposed legislation that would have eliminated a first-month purchase option for power wheelchairs provided by Medicare now has been reworked to retain this option for those who use complex Class 3 power wheelchairs.

MDA Vice President for Advocacy Annie Kennedy credited quick response by MDA advocates with helping sway the House of Representatives Tri-Committee on health care reform, which crafted the Americans Affordable Health Choices Act (H.R. 3200), a proposed package of health care reforms. She noted that most of the people served by MDA use Group 3 power wheelchairs.

CNM, MTM Research: Families Gather

Families affected by muscle diseases known as centronuclear myopathies, including myotubular myopathy, may be interested in attending a conference in Houston July 24-26, either in person or online.

MDA Tweets

Now there’s yet another way to get news from MDA – follow the Association on Twitter, the popular social media tool, through its account, @MDAnews.

Disability Rights Q&A

“Individuals with disabilities are a protected class under civil rights laws, and it is the one protected class that anyone can join, usually involuntarily, at any point in their lives.”

So says attorney Jacquie Brennan, the author of a new guide to disability rights laws, The Disability Law Handbook, that recently was released by the Southwest Disability and Business Technical Assistance Center (DBTAC).

Power Chair Medicare Benefit Threatened

People who receive a power wheelchair through Medicare may lose the option to buy the chair immediately, under a proposed change to Medicare rules being considered by committees dealing with healthcare reform in the U.S. House of Representatives.

The proposed rule change would eliminate the first-month purchase option for power wheelchairs provided by Medicare, requiring all Medicare beneficiaries to wait 13 months before owning their chairs.

Kids' Cool Chair Creation

When a group of Wethersfield (Conn.) High School students was brainstorming ideas for a science project, they looked no further than team member Griffin Latulippe for an idea that vaulted them into the international spotlight.

Flood Volunteer With ALS

Six or seven days a week, eight or nine hours a day, Steve Thomas is a home wrecker.

Far from being a destroyer, Thomas, 62, of Cedar Rapids, Iowa, is part of an important restoration process that he calls “gutting and mucking.”

Thomas is one of hundreds of volunteers helping to tear down thousands of Cedar Rapids homes ravaged by raging floodwaters last year, displacing more than 20,000 people. Volunteers tear down walls and rip up floors so the debris can be hauled off and the homes rebuilt.

Flood Volunteer with ALS

Six or seven days a week, eight or nine hours a day, Steve Thomas is a home wrecker.

Far from being a destroyer, Thomas, 62, of Cedar Rapids, Iowa, is part of an important restoration process that he calls “gutting and mucking.”

Thomas is one of hundreds of volunteers helping to tear down thousands of Cedar Rapids homes ravaged by raging floodwaters last year, displacing more than 20,000 people. Volunteers tear down walls and rip up floors so the debris can be hauled off and the homes rebuilt.

Respiratory Equipment: Air Travel Nightmare

A May 13 ruling from the U.S. Department of Transportation (DOT) is proving a headache for manufacturers of respiratory equipment and a frustration for commercial air travelers who rely on ventilators, respirators, positive airway pressure devices such as CPAP and BiPAP, or personal oxygen concentrators.

ALS 'Lake Link' Tenuous

Recent media reports have raised the question of a possible link between an increased risk of developing amyotrophic lateral sclerosis (ALS) and living near Lake Mascoma in Western New Hampshire.

The Union Leader in New Hampshire and other news outlets have reported that the risk of developing ALS is 25 times higher than average for people living around Lake Mascoma, located in Enfield and Lebanon, N.H. The source of this statistic was not explained.

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