Daily Living

E-Textbooks Improving

Jeff Lester says electronic textbooks are “absolutely the biggest problem I have faced” in working toward his graduate degree.

The 42-year-old student at the University of Dearborn-Michigan, who has ALS (amyotrophic lateral sclerosis, or Lou Gehrig’s disease), has had to wait as long as five weeks after the start of class to receive an electronic version of the textbook. And then he has had to struggle through copy that lacks illustrations, or which has intermingled sidebar copy with the main text.

Juan flying high

Talk about a chance for a kid to go airborne!

The producers of “Nick News with Linda Ellerbee” (an educational show for kids and teens on the Nickelodeon network) recently were looking for a young person with muscular dystrophy who might want to take a zero-gravity (weightless) plane flight, and have his or her experiences taped for the show.

Bringing the World to Dale

Dale Dulaney
Dale Dulaney travels the World Wide Web via a mouth-controlled computer obtained by his friend Karen Wheeler, who also has a neuromuscular disease.

What Will You Do If the Power Goes Out?

Summer and fall typically bring storms that cause power outages — not a comforting thought for people who rely on electrically powered equipment to breathe.

Fortunately, preparation can reduce the impact of power outages, even when hurricane-magnitude disasters strike.

Existing backup

Those who use portable ventilators already have a power option if household power goes out — the unit’s batteries. 

Alert: New Air Regs

Travelers with respiratory difficulties who use commercial airlines need to be aware of a new labeling requirement for ventilators, respirators, positive airway pressure devices (i.e., CPAP, BiPAP) and personal oxygen concentrators.

Trying to travel without following the new regulations can result in being denied a seat, or being required to turn off the respiratory equipment during the flight. The new rule is from the U.S. Department of Transportation (DOT), and relates to existing Federal Aviation Administration (FAA) regulations.

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