About legislation H.R.2295, S. 1382:
Amyotrophic lateral sclerosis (ALS) is a progressive disease which affects thousands of Americans. However, a comprehensive national system to collect and catalogue information on the incidence of ALS in the United States does not exist.
This legislation authorizes federal funding ($25,000,000 for fiscal year 2008, and $16,000,000 for each of the fiscal years 2009 through 2012) to establish a national registry. This bill directs the Centers for Disease Control and Prevention to:
The House bill was sponsored by Representative Eliot Engel (D-NY 17th) and had 238 cosponsors including 164 Democrats and 74 Republicans. Senator Harry Reid (D-NV) sponsored the Senate bill which had 66 cosponsors including 40 Democrats, 2 Independents, and 24 Republicans.
The ALS Registry Act passed Congress and is law.