support and resources

Buy a Shamrock Today, Help Fight Back Against Muscle Disease

How to Obtain Durable Medical Equipment Via Medicare

Durable medical equipment (DME), such as wheelchairs, walkers, portable oxygen devices and hospital beds, can be very expensive — and the process for obtaining them from Medicare can be very confusing. 

Learn about Medicare coverage of DME and get the latest information on obtaining such equipment in a webinar Tuesday, Jan. 29, from 2 to 3 p.m. Eastern time.  

“Medicare Coverage of Durable Medical Equipment” is presented by the Medicare Rights Center and costs $40 to attend. It will cover:

Patient Assistance Program Launched for Nuedexta

A new Patient Assistance Program can help people with a diagnosis of pseudobulbar affect (PBA) get a medication designed to treat the condition at low or no cost.

Scholarships Offered to Students with a Parent with ALS

The Merfeld Family Foundation Scholarship Fund — a national scholarship to help children of parents with amyotrophic lateral sclerosis (ALS) pay for their college education — is now accepting applications for the fall 2012 term.

The deadline to apply for one of four $2,500 scholarships is Jan. 6.

The scholarship fund was established by Greg Merfeld, who received an ALS diagnosis in 2010 at age 49. Merfeld has lost more than 20 relatives to the disease, which runs in his family.

Friends with SMA Inspire Scouts to Create Wheelchair Device

Ten-year-old Quinn Schnitzlein has been using a power chair since he was 3, so he’s a pretty good driver. But the boy from Marietta, Ga., who has spinal muscular atrophy (SMA), often bumped into things when he backed up.

One day last year, Quinn and some friends were at a fast-food restaurant. “We were at different tables,” Quinn says, “and when I’d try to turn around to talk to them, I kept hitting things.”

MLB Honors ALS Activist

The law professor and ALS activist responsible for getting Major League Baseball fired up to defeat ALS died Nov. 1. In tribute, Game 5 of the World Series, played on Nov. 2 between the New York Yankees and Philadelphia Phillies, was dedicated to Michael Goldsmith, 58, a devoted baseball fan who pushed the game he loved to fight the disease he hated.

New Mattie Book

 MDA National Vice President Jeni Stepanek will be a guest on the November 2 broadcast of ABC's "Good Morning America" to promote the release of Messenger: The Legacy of Mattie J. T. Stepanek and Heartsongs, an inside look at the life of her famous son, who served as MDA’s National Goodwill Ambassador from 2002-2004.

ALS TDI Webcast

A Webcast is now available of the fourth annual research symposium held as part of the ALS TDI Leadership Summit 2009 on Oct. 5. The symposium was conducted at the MDA-supported ALS Therapy Development Institute in Cambridge, Mass.

New ALS TDI Research Symposium Now Online





ALS TDI Laboratory
MDA and the ALS Therapy Development Institute began a jointly funded, $36 million ALS drug development project in 2007.

New ALS Care Guidelines Released

The American Academy of Neurology (AAN) released its new guidelines on patient care in amyotrophic lateral sclerosis (ALS) on Oct. 13, 2009. Several MDA-affiliated physicians were involved in their development.

MDA in Your Community


Grants