Clinical Trials

  • MDA funds more ALS research than any other voluntary health organization in the U.S.
  • Since its inception, MDA has dedicated almost $325 million to ALS research and health care services.
  • We currently support nearly 50 ALS research projects worldwide with a total commitment of $15 million.
  • Our "umbrella organization" status puts us in a unique position – we leverage the advances in research and best practices for clinical care from one disease to inform progress in others.
  • Our research advocacy efforts are prompting the U.S. Food and Drug Administration and other policymaking groups to address the unique needs of ALS patients and their families.

About clinical trials

A clinical trial is a test in humans of an experimental medication or therapy. Clinical trials are experiments, not treatments, and participation requires careful consideration.

Although it's possible to benefit from participating in a clinical trial, it's also possible that no benefit — or even harm — may occur. Keep your MDA clinic doctor informed about any clinical trial participation. (Note that MDA has no ability to influence who is chosen to participate in a clinical trial.)

For more about clinical trials in general, see Learning About Clinical Studies and the Quest magazine article about trial participation in neuromuscular disease, Being a Co-Adventurer.

ALS clinical trials

For a more refined list of ALS clinical trials, visit ClinicalTrials.gov, a registry of federally and privately supported clinical trials in the United States and around the world. Select "Search for Clinical Trials," and follow the instructions to narrow down your search results.