Spinal Muscular Atrophy (SMA)

Barbara Danielson

Barbara has been painting and teaching art classes for many years. Her works have been exhibited in numerous art fairs and expositions in California. While a resident of the state, Barbara served on the San Diego Art Council for six years and was a member of several art organizations.

Location

Lakewood, CO
Full name: 
Barbara Danielson
Artist: 
Barbara Danielson
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Colored Pencil

Sebastian Spreng

Location

Miami, FL

Sebastian is an internationally known artist whose work has been exhibited in Argentina, Germany, Venezuela and across the United States. Influenced by literature, mythology and classical music, his works are included in private, public and corporate collections worldwide. Sebastian is also a writer and received the MDA Personal Achievement Award for Florida in 1995.

Full name: 
Sebastian Spreng
Artist: 
Sebastian Spreng
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Oil

Gerald Jean-Pierre

Location

Miami, FL

Gerald donated this painting at age 19. He won several awards for his artwork, including the Dade County Silver Knight Award.

Full name: 
Gerald Jean-Pierre
Artist: 
Gerald Jean-Pierre
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Mixed Media

Edith Sarraille

Location

Sun City, CA

Edith retired from the California Mental Health Department as a psychiatric technician in 1982. Soon after, she began painting and exhibited her works in many juried art shows and local galleries in the Payson, Ariz., area where she lived for several years. Edith also was a published writer of poetry and short stories.

Full name: 
Edith Sarraille
Artist: 
Edith Sarraille
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Oil

Steven Beuerlein

Location

Phoenix, AZ

Steven created this artwork at age 10 while attending the 1999 MDA summer camp in Heber, Ariz. His favorite hobbies include drawing, swimming and riding horses.

Full name: 
Steven Beuerlein
Artist: 
Steven Beuerlein
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Crayon

Melina Fatsiou

Location

Huntsville, AL

Melina has proficiency certificates in English from Cambridge and Oxford Universities, and attended the Panteion University of Athens. She enjoys painting and sketching, and has participated in a number of art exhibits. She also has written and published literature.

Full name: 
Melina Fatsiou
Artist: 
Melina Fatsiou
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Acrylic

Research Briefs: FA, MG, MM, MMD1, gene therapy

Edison drugs target FA, mitochondrial diseases

Causes/Inheritance

Motor neurons
Muscle-controlling nerve cells (motor neurons) are located mostly in the spinal cord. Long, wirelike projections connect the motor neurons to muscles in the limbs and trunk. Normally, signals from the neurons to the muscles cause muscles to contract. In SMA, motor neurons are lost, and muscles can’t function.

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