Spinal Muscular Atrophy (SMA)

Alyssa Schwartzenburg

Alyssa has enjoyed drawing and painting for most of her life. She is a longtime MDA camper and loves attending Rainbow Camp every summer. Alyssa has received awards in school art shows and had one piece exhibited in a local gallery. In addition to creating artwork, Alyssa enjoys listening to music. She plans to attend the University of Louisiana in Lafayette.

Location

Sulphur, LA
Full name: 
Alyssa Schwartzenburg
Artist: 
Alyssa Schwartzenburg
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Acrylic

Erin Kimball

Location

Plauncheville, LA

Erin loved to attend MDA summer camp and especially enjoyed swimming. This work of art was created in an MDA-sponsored children’s art workshop held May 25, 1992, in Lafayette, La.

Full name: 
Erin Kimball
Artist: 
Erin Kimball
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Acrylic

Craig Wilderman

Location

New Harmony, IN

Craig created this artwork at age 17 and won several awards for his works. In 2004, he received a bachelor’s degree from Southern Illinois University, where he began painting on canvas. Craig is active in theater groups, singing and a car club.

Full name: 
Craig Wilderman
Artist: 
Craig Wilderman
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Digital Media

Ken Jasch

Location

Chicago, IL

Ken experienced the STS-63 Discovery space shuttle night launch on February 3, 1995. This artwork began as a photograph that was digitally enhanced to express the stages of space flights as they move heavenward. Ken received the 1994 Personal Achievement Award for Illinois and is a former member of MDA’s National Task Force on Public Awareness.

Full name: 
Ken Jasch
Artist: 
Ken Jasch
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Graphic Art Photo

Mark Plocharczyk

Location

Crestwood, IL

Mark has an associate’s degree in liberal arts from the Moraine Valley Community College in Palos Hills, Ill., and is certified in computer programming. His hobbies include computer design and public speaking. Mark volunteers for MDA in the Chicago suburbs.

Full name: 
Mark Plocharczyk
Artist: 
Mark Plocharczyk
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Digital Media

Kevin Kage

Location

Berkeley, IL

Kevin created this artwork at age 14 at an MDA-sponsored art workshop held on May 3, 1992, at the Chicago Art Institute. He likes singing, composing music and acting, and has been very active in several music and drama organizations.

Full name: 
Kevin Kage
Artist: 
Kevin Kage
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Tile

Rob Myers

Location

Rockford, IL

Rod was an avid bird watcher, and was involved in a number of environmental and political activities. He also wrote and performed music and comedy.

Full name: 
Rob Myers
Artist: 
Rob Myers
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Colored Pencil

Morris Nakamura

Location

Ewa Beach, HI

Morris is a former professional carpenter. A self-taught artist, he prefers painting in oils and uses his love of nature to create landscapes and seascapes. Morris is a member of a citizen advisory committee for metropolitan planning in Oahu.

Full name: 
Morris Nakamura
Artist: 
Morris Nakamura
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Oil

Brent Gauthier

Location

Harwinton, CT

Brent specialized in portraits of animals and had his own business called Pastels by Brent for several years. Unfortunately, in recent years he was unable to paint due to diminished abilities. After earning an associate’s degree in CAD Engineering, he was employed as a tool designer for more than 10 years.

Full name: 
Brent Gauthier
Artist: 
Brent Gauthier
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Pastels

Alexis Villa

Location

Pico Rivera, CA

Alexis enjoys art and math in school. Her other hobbies are dancing and singing. Alexis also enjoys attending MDA-sponsored summer camp every year and has appeared in national print ad campaigns for the Association.

Full name: 
Alexis Villa
Artist: 
Alexis Villa
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Marker

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