Spinal Muscular Atrophy (SMA)

Camp Fun

Artist: 

Alexis enjoys art and math in school.  Her other hobbies are dancing and singing.  Alexis also enjoys attending MDA sponsored summer camp every year and has appeared in national print ad campaigns for the Association.

Braid Of Gold

Barbara has been painting and teaching art classes for many years.  Her works have been exhibited in numerous art fairs and expositions in California.  While a resident of that state, Barbara served on the San Diego Art Council for six years and was a member of several art organizations.

Blue Portrait

Melina has a proficiency certificate in English from Cambridge and Oxford Universities and attended the Panteion University of Athens.  She enjoys painting and sketching and has participated in a number of art exhibits.  She has also written and published literature.

Autumn

Craig created his artwork at age 17 and won several awards for his works.  In 2004 he received a bachelor’s degree from Southern Illinois University where he began painting on canvas.  Craig is active in theatre groups, singing and a car club.

Living With

Dear Friends:

I’ve had symptoms of spinal muscular atrophy since I was a baby. When most children were beginning to walk, my parents noticed that my head would flop to the floor as I crawled.

Jerry Ferro

Read more ...

'Milk-Making' Molecule Lengthens Life Span in SMA Mice

The administration of a protein called prolactin has been shown to slow weight loss, improve motor function and increase life span by approximately 70 percent in mice with a disease resembling a severe form of spinal muscular atrophy (SMA).

Prolactin is a hormone whose primary function is to promote milk production in women who are breastfeeding.

SMA: Wider ‘Window of Opportunity’ for Treatment?

The "window of opportunity" for treating infants at risk of developing spinal muscular atrophy (SMA) may not be as narrow as some experts have feared, new experiments in mice suggest.

Trevor Schaid

Location

Monroe, WI

Trevor created this artwork at age 16 at a 1991 art workshop at MDA’s Wonderland Camp in Camp Lake, Wis. He graduated from the University of Wisconsin in Madison in 1998 with a double major in English and psychology.

Full name: 
Trevor Schaid
Artist: 
Trevor Schaid
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Watercolor

Danielle Harada

Location

Federal Way, WA

Danielle won awards for her artwork in high school and is currently studying graphic design at the International Academy of Design & Technology. She has created banners for the local MDA summer camp. Along with painting, Danielle also enjoys other arts and crafts, and playing cards.

Full name: 
Danielle Harada
Artist: 
Danielle Harada
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Watercolor

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