Myotonic Muscular Dystrophy (MMD)

Lee Baker

Location

Roanoke, VA

A lifelong artist, Lee has exhibited artwork and won awards both locally and in Germany. She has a bachelor’s degree in education and teaches art at a local studio. Lee is a member of the Virginia Watercolor Society and the League of Roanoke Artists.

Full name: 
Lee Baker
Artist: 
Lee Baker
Disease: 
Myotonic Muscular Dystrophy (MMD)
Medium: 
Watercolor

Carol Bruins

Location

Cranston, RI

Carol created this artwork at an MDA sponsored art workshop held August 13, 1992, in Providence. Her hobbies include reading, swimming and bike riding.

Full name: 
Carol Bruins
Artist: 
Carol Bruins
Disease: 
Myotonic Muscular Dystrophy (MMD)
Medium: 
Watercolor

Lacy Gustafson

Location

Stanton, ND

Lacy began painting in elementary school and still enjoys creating artwork. Her works have received awards in the Stanton Art Show. Lacy is studying art, photography and illustration at Bismarck State College. Her other interests include fishing, camping and reading.

Full name: 
Lacy Gustafson
Artist: 
Lacy Gustafson
Disease: 
Myotonic Muscular Dystrophy (MMD)
Medium: 
Acrylic

Sarah Brodshaug

Location

Fargo, ND

Sarah created this artwork at age 13. She enjoys MDA summer camp and taking voice lessons. Sarah served as the 2002 MDA State Goodwill Ambassador for North Dakota.

Full name: 
Sarah Brodshaug
Artist: 
Sarah Brodshaug
Disease: 
Myotonic Muscular Dystrophy (MMD)
Medium: 
Mixed Media

Lynda LeValley

Location

Westland, MI

Lynda created this artwork at age 14 in an MDA-sponsored children’s art workshop held at the Detroit Institute of Art. She attended Farmington High School, where she enjoyed history and music.

Full name: 
Lynda LeValley
Artist: 
Lynda LeValley
Disease: 
Myotonic Muscular Dystrophy (MMD)
Medium: 
Canvas Print

Pamela Jablonski

Location

Bonita Springs, FL

Pamela has been drawing and painting most of her life. She has both a bachelor’s degree and a master’s degree in education. Her works have been shown in local juried shows at the Lee Memorial Hospital.

Full name: 
Pamela Jablonski
Artist: 
Pamela Jablonski
Disease: 
Myotonic Muscular Dystrophy (MMD)
Medium: 
Watercolor

Living With

Dear Friends:

Myotonic muscular dystrophy (MMD) has been a part of my family’s life for many years. The symptoms for my siblings and me began in our 30s, and we believe the disease goes back at least two generations before us. Some of my nieces and nephews also are affected.

Denise Balon

Read more ...

Clinical Trials

About clinical trials

A clinical trial is a test in humans of an experimental medication or therapy. Clinical trials are experiments, not treatments, and participation requires careful consideration.

Although it's possible to benefit from participating in a clinical trial, it's also possible that no benefit — or even harm — may occur. Keep your MDA clinic doctor informed about any clinical trial participation. (Note that MDA has no ability to influence who is chosen to participate in a clinical trial.)

Research

The major focus in MMD research has been on the molecular underpinnings of the disease. To date, most of the work has been done using animal and cellular models of type 1 MMD. However, many experts believe the findings from the MMD1 experiments will have implications for MMD2 as well.

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