Inclusion-Body Myositis (IBM)

MDA Awards $13.7 Million in Research Grants

The Muscular Dystrophy Association has awarded 40 research grants totaling $13.7 million to advance the understanding of disease processes and uncover new strategies for treatments and cures of muscular dystrophy and the more than 40 other diseases in the Association's program.

The new grants were recommended by MDA's Scientific and Medical Advisory Committees and approved by MDA's Board of Directors at its July 2011 meeting.

The Cello Player

Artist: 

Frank began painting ceramics in 1989 and then expanded into acrylics on canvas.  He received both bachelor and master degrees from the University of Illinois where he competed in gymnastics and received many NCAA awards.  Frank served as the Executive Director of the U.S. Gymnastics Federation for many years and also served as the Chairman of the Board for the International Gymnastics Hall of Fame.

Sledding on Hillcrest

Artist: 

William was a licensed surveyor and founded his own surveying business. Upon his retirement in 1995, he began painting.  His subjects were “vintage Watchung sites” and many of his paintings are on display at the Watchung Police Station.  This artwork recalls William and his teenage friends sledding on Hillcrest Road in Watchung around 1949.  This artwork was featured in the MDA 2003 Holiday Wishes card collection.

Quiet Harbor

Artist: 

Mike spent 40 years as an advertising copywriter.  His hobbies were hiking and distance running until the IBM diagnosis in 1996.  In 2000 Mike began painting landscapes.  No longer able to bend his fingers, he used broad strokes resulting in an impressionistic feel to this work.  Mike’s wife, Elizabeth, also has a painting in the MDA Art Collection and both are members of the San Diego Watercolor Society.

Point Piños Light

Artist: 

Mike spent 40 years as an advertising copywriter.  His hobbies were hiking and distance running.  In 2000 Mike began painting and as a watercolorist, he revisits the outdoor landscapes he loves, but with a brush and palette instead of hiking boots and sneakers.  Mike’s wife, Elizabeth, also has a painting in the MDA Art Collection and both are members of the San Diego Watercolor Society.

William Titus

Location

Watchung, NJ

William was a licensed surveyor and founded his own surveying business. Upon his retirement in 1995, he began painting. His subjects were “vintage Watchung sites,” and many of his paintings are on display at the Watchung Police Station. This artwork recalls William and his teenage friends sledding on Hillcrest Road in Watchung around 1949. This artwork was featured in the MDA 2003 Holiday Wishes card collection.

Full name: 
William Titus
Artist: 
William Titus
Disease: 
Inclusion-Body Myositis (IBM)
Medium: 
Oil

Frank Bare

Location

Mesquite, NV

Frank began painting ceramics in 1989 and then expanded into acrylics on canvas. He received both bachelor’s and master’s degrees from the University of Illinois, where he competed in gymnastics and received many NCAA awards. Frank served as the Executive Director of the U.S. Gymnastics Federation for many years and currently serves as the chairman of the Board for the International Hall of Fame.

Full name: 
Frank Bare
Artist: 
Frank Bare
Disease: 
Inclusion-Body Myositis (IBM)
Medium: 
Acrylic

Mike Shirk

Location

San Diego, CA

Mike spent 40 years as an advertising copy writer. His hobbies included hiking and distance running. In 2000, Mike began painting, and as a watercolorist, he revisits the outdoor landscapes he loves, but with a brush and palette instead of hiking boots and sneakers. He is a member of the San Diego Watercolor Society.

Full name: 
Mike Shirk
Artist: 
Mike Shirk
Disease: 
Inclusion-Body Myositis (IBM)
Medium: 
Watercolor

Clinical Trials

About clinical trials

A clinical trial is a test in humans of an experimental medication or therapy. Clinical trials are experiments, not treatments, and participation requires careful consideration.

Although it's possible to benefit from participating in a clinical trial, it's also possible that no benefit — or even harm — may occur. Keep your MDA clinic doctor informed about any clinical trial participation. (Note that MDA has no ability to influence who is chosen to participate in a clinical trial.)

Research

Researchers supported by MDA are studying the underlying mechanisms that cause inflammatory myopathies, the group of diseases to which inclusion-body myositis (IBM) belongs.

One research team studying the mechanisms of muscle destruction in IBM-affected muscle fibers is building on recent observations that two proteins are abnormally elevated in these fibers. One is called myostatin, which limits muscle growth; and the other is called NF kappa B, which is known to play a role in inflammation.

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