MDA has funded Duchenne muscular dystrophy research since 1950, and has paid for more research into this disease than any nongovernmental agency. It also provides the most comprehensive services program of any nonprofit organization in the country.
MDA, in collaboration with the American College of Chest Physicians, has issued a consensus statement on management of patients with Duchenne muscular dystrophy (DMD) undergoing anesthesia or sedation.
The complete statement is published in the December 2007 issue of the journal Chest. A technical abstract and list of authors is available on the journal’s website. (The full paper requires a journal subscription.)
The Aug. 15, 2004, issue of the American Journal of Respiratory and Critical Care Medicine, published by the American Thoracic Society (ATS), contains a set of guidelines about respiratory care in Duchenne muscular dystrophy (DMD) prepared by a special ATS working group. Members of this group are experts in DMD respiratory care, generally managing the respiratory care of patients being seen at Muscular Dystrophy Association (MDA) clinics.
Belen Pappa, a graduate student in genetic counseling, is seeking participants for a survey-based study about psychosocial functioning in families in which a child has Duchenne muscular dystrophy (DMD).