Congenital Muscular Dystrophy (CMD)

CMD - Mahasweta Girgenrath, Ph.D.

MDA awarded a research grant totaling $357,465 over a period of three years to Mahasweta Girgenrath, an assistant professor in the Health Sciences Department at Boston University in Boston. The funds will help support Girgenrath’s work to find a combination therapy to treat type 1A congenital muscular dystrophy (MDC1A).

Cell Therapy - Ilona Skerjanc, Ph.D.

MDA awarded a research grant totaling $280,487 over a period of two years to Ilona Skerjanc, a professor in the department of biochemistry, microbiology & immunology at the University of Ottawa in Ontario, Canada.

CMD/LGMD - Jeffrey Miller, Ph.D.

MDA awarded a research grant totaling $343,860 over a period of three years to Jeffrey Boone Miller, senior scientist at Boston Biomedical Research Institute in Watertown, Mass., and associate professor of neurology at Harvard Medical School in Boston.

Muscle Physiology - Elizabeth Chen, Ph.D.

MDA has awarded a research grant totaling $321,489 over a period of three years to Elizabeth Chen, an associate professor at Johns Hopkins University School of Medicine in Baltimore. The funds will help support Chen's research into a mechanistic understanding of normal muscle physiology, which will inform potential therapeutic strategies aimed at treating various genetic and acquired degenerative muscle diseases.

Man with CMD Died Doing What He Loved

Michael Wogan had been looking forward to the trip to the National Championship Air Races in Reno, Nev.

According to his younger brother James, “Michael liked to get out and travel, and he was so excited about getting on a plane.”

Michael’s older brother Billy, 26 — who, like Michael, 22, and James, 19, has congenital muscular dystrophy (CMD)— was supposed to attend the show with their dad. When he couldn’t, Michael went instead.

He promised to tell his brothers all about it.

Induced Stem Cells Require Cautious Approach

Stem cells have been much in the news lately, including for neuromuscular diseases.

MDA Awards $13.7 Million in Research Grants

The Muscular Dystrophy Association has awarded 40 research grants totaling $13.7 million to advance the understanding of disease processes and uncover new strategies for treatments and cures of muscular dystrophy and the more than 40 other diseases in the Association's program.

The new grants were recommended by MDA's Scientific and Medical Advisory Committees and approved by MDA's Board of Directors at its July 2011 meeting.

Untitled - Terry Burleigh

Terry created this collage at age 10 at an MDA-sponsored children's art workshop held June 6, 1992, in Houston, Texas.  She graduated from Orangefield High School in May 1999.

Untitled - Sarah Volante


Sarah created this artwork at age 9 at an MDA-sponsored art workshop held August 13, 1992, in Providence.

The Flower Cart


Kim discovered her considerable talent for painting after completing courses in architectural drafting.  She concentrates on the primitive landscape genre, with a folk flavor, using acrylic and watercolor.  Kim is a prolific artist and has sold numerous paintings.