Charcot-Marie-Tooth Disease (CMT)

MDA 2012 Conference Report: Genetics and Immunology Update

More than 500 physicians, allied health care professionals and MDA staff attended the MDA's 2012 Clinical Conference in Las Vegas, March 4-7.

The program emphasized:

Untitled - Lisa Booth-Henry

Lisa graduated from the University of Southwestern Louisiana with a degree in education and teaches preschool children.

Self-Portrait - Heather Harrelson

Heather created this painting at age 16 at an MDA-sponsored children's art workshop.  She graduated from St. Thomas Episcopal High School and attended college in Houston.

Self-Portrait - Milda Vizbar

Artist: 

Milda is an established artist and designer whose work has been used on greeting cards.  She's published two books of humorous drawings and illustrates children's books.  Milda has taught art for 16 years.

3 Cottages in Saints-Marie

Haleigh served as the MDA National Goodwill Ambassador in 1968-69.  Her mother was an artist and encouraged Haleigh in art as a child.  When the effects of the CMT caused a loss of dexterity in her hands, she was inspired to create artwork using computer programs.  Haleigh has exhibited works in galleries in the Royal Oak area.

Haleigh Maurice

Location

Royal Oak, MI
2012
Full name: 
Haleigh Maurice
Artist: 
Haleigh Maurice
Disease: 
Charcot-Marie-Tooth Disease (CMT)
Medium: 
Digital Media

Coler

Lauren created this artwork at age nine at an MDA-sponsored children's art workshop at the Museum of Fine Arts in Boston on April 24, 1994.  She enjoys skiing, soccer and swimming.

Lauren Sanford

Location

Plymouth, MA
2012
Full name: 
Lauren Sanford
Artist: 
Lauren Sanford
Disease: 
Charcot-Marie-Tooth Disease (CMT)
Medium: 
Acrylic

Freedom, Fun and Friendship

Artist: 

Since Abbey became MDA National Goodwill Ambassador in 2007, she has created numerous pieces of artwork for the Association’s national sponsors.  One of her works is displayed at the Harley-Davidson Museum in Milwaukee, Wis.  This artwork was created in 2010 when Abbey and her parents traveled to Washington, D.C. to tour our nation’s Capitol and visit legislators as well as the headquarters of the IAFF and NALC.

MDA Genetic Counseling Webinar Answers Key Questions

Respondents to MDA’s Transitions Survey — in other words, people with a neuromuscular disease who are in their teens through late 30s — made it clear they had questions about the genetics of their disease, as well as questions about family planning and the value of diagnostic testing.

MDA’s Genetic Counseling Webinar, which occurred Feb. 22, 2012, answers many of those questions.

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