Mark created this self-portrait at age 17 in an MDA-sponsored children's art workshop held at the Tucson Museum of Art. He graduated from Sabino High School. Mark’s interests include photography and classic cars.
Brian began painting and drawing as a small child. He has won awards for his works at Chaparral High School and the Temecula Rotary Club art exhibits. He also has organized summer art camps for 4-6th graders, instructing them in drawing and painting with acrylics and watercolors. Among his other interests are science classes and soccer. Along with the muscle disease, Brian also has cerebral palsy.
Benjamin graduated from high school in Rock Falls, Illinois, where he worked on the school news program, Rocket Update, as a reporter and cameraman. He also studied art at the Art Institute of Phoenix.
MDA leads the search for treatments and therapies for inherited and endocrine myopathies. The Association also provides comprehensive supports and expert clinical care for those living with inherited and endocrine myopathies.
In this section, you’ll find up-to-date information about inherited and endocrine myopathies, as well as many helpful resources. This information has been compiled with input from researchers, physicians and people affected by the disease.